tag:blogger.com,1999:blog-718404646203790155.post7482163236493833096..comments2023-10-24T04:11:25.953-07:00Comments on Super Skyler: Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-718404646203790155.post-32279521044246551552011-06-13T19:49:27.432-07:002011-06-13T19:49:27.432-07:00That's the same pump Erin used. I can relate ...That's the same pump Erin used. I can relate to all that IV medication. It used to take up all the space in our fridge. I guess it was good because then I'd have to throw out the leftovers more often. :) We used to put the pumps in a mini backpack so she could walk around without feeling all hooked up. I hope things improve for you guys. You really deserve it!Piano Momhttps://www.blogger.com/profile/18368197922538227607noreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-26794115635028576612011-06-13T06:20:17.883-07:002011-06-13T06:20:17.883-07:00Crystal ,, your doing great... always remember tha...Crystal ,, your doing great... always remember that,, and skyler, I love seeing your beautiful little face... keep fighting little angel.<br /><br />zachs momAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-55498283300454267082011-06-12T19:26:53.114-07:002011-06-12T19:26:53.114-07:00Yea! No hospital. Hope the fever takes a nosedive...Yea! No hospital. Hope the fever takes a nosedive really soon.cjmomhttps://www.blogger.com/profile/17637616665034359027noreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-27933245723901536672011-06-12T18:44:50.346-07:002011-06-12T18:44:50.346-07:00wow... it always amazes me when I read your blog. ...wow... it always amazes me when I read your blog. You make me feel gratitude for the simple things in my life. Thanks for keeping a record of all of your experiences and sharing them with us. It will be such a treasure to you to look back on and appreciate his good health when Skyler is through with all of this. He is such a good sweet boy and you are a true hero to me Crystal. Keep on keepin' on :)Susihttps://www.blogger.com/profile/16653553662874709166noreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-50727735391665306452011-06-11T17:04:45.514-07:002011-06-11T17:04:45.514-07:00Crystal, you are a strong Momma! Izzy was on some...Crystal, you are a strong Momma! Izzy was on some antibiotics during treatment for a macrobacteria, we only had to give it to her 3 times a day and it ran for 1/2 each, so it's no where near what Skyler is going through, but it was tough. I hope he doesn't have to deal with it too much longer.Jenniehttps://www.blogger.com/profile/16232930528705382365noreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-1025476384932706872011-06-11T07:52:22.494-07:002011-06-11T07:52:22.494-07:00Have you happened to see if they could hook you up...Have you happened to see if they could hook you up with med balls? My daughter was on IV antibiotics for 1 1/2 yrs (24hrs a day 7 days a week). After a while with a pump I found med balls and it made life much easier. They are pressurized so no pump needed. I am sure that they don't work with everything but if the meds he is on would work with it they are worth the fight!!Suzannehttps://www.blogger.com/profile/14257466787209471770noreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-91393178891365597732011-06-11T07:49:21.449-07:002011-06-11T07:49:21.449-07:00Livestrong Skyler!
I'm a Brazilian young adu...Livestrong Skyler! <br /><br />I'm a Brazilian young adult who was recently diagnosed with lupus,an autoimmune disease. It's nothing compared with this awful disease you're fighting with...<br />And since I'm an atheist I don't pray but I keep you and your Family on my thoughts(btw do you know you have an awesome mommy?? - Congrats Crystal!) and I keep sending a positive vibe to you guys. <br /><br />Wishing you guys have a great weekend! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-718404646203790155.post-49288773557245402812011-06-10T21:55:57.344-07:002011-06-10T21:55:57.344-07:00Wow. I will never complain about hauling a toy or ...Wow. I will never complain about hauling a toy or sippy or blanket with my kids again. Okay, I will forget and complain eventually but seeing him with a little machine makes my kids health feel more valuable. We don't know what we've got until its gone. For sure. He is so handsome. Keep fighting big boy! Sooo many people are praying for you!Bryce and Candice Blood Familyhttps://www.blogger.com/profile/01084069299003825219noreply@blogger.com