tag:blogger.com,1999:blog-7184046462037901552024-03-13T10:49:14.494-07:00Super SkylerCrystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.comBlogger295125tag:blogger.com,1999:blog-718404646203790155.post-18960483287769575582012-07-31T21:43:00.001-07:002012-07-31T21:43:29.190-07:00<span style="color: yellow; font-size: large;">I officially have a KINDERGARTNER folks! I still cannot believe that Skyler is old enough and healthy enough to go to school. Each time I drop him off I have the biggest smile on my face and tears in my eyes. It truly is a miracle and something I have been looking forward to since I was pregnant with my little man and something he deserves more than anyone I know. I just cannot express in words the love and admiration I have for him and his continued courage in the face of all the many trials he has had to endure at such a young age.</span><br />
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<span style="color: yellow; font-size: large;">This is the start of a new chapter in our lives. Along with starting school we have moved into our new place. Talk about one hectic week but we have finally started getting settled into our new home and Skyler's new school routine. It has definitely been an adjustment for him too. He is really struggling with trying to find his identity right now. He is still in the midst of receiving chemo everyday and struggling with the after effects of such a harsh road of his cancer journey, and now trying to fit in a normal life with the rest of his school mates and trying to move past cancer being so much of his identity. He is starting to get upset when he sees the things I post on here about him and doesn't like talking about his PICC or his hearing aids or his scars. I have decided to respect his wishes and think its time to take a break from blogging for awhile.</span><br />
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<span style="color: yellow; font-size: large;">This blog has been such a big part of my life these past two years and has not only been my way of keeping family and friends updated about his treatments, but it has been a form of therapy and healing for me. I learned the hard way after my husband died that keeping my feelings in and hidden from the everybody was the wrong way to go about things. I tried to block everything out and just go numb. I just had to pretend that that my part of my life didn't exist because it was just too painful to think about. With Skyler I too have had to block out some parts that are just too painful to think about or go there again, things that were too hard and too personal to write down for the world to see, but for the most part I have put everything out there. I have been able to put my feelings down in words, get them off my chest and move on. It has also been my way of opening eyes the way mine were that kids get cancer too. The word that grown adults are scared to hear, kids hear them as well. Its an ugly world that doesn't get much attention and is extremely underfunded. Our kids deserve so much more. If I have helped in anyway to give these kids that know suffering more than most a voice than I am happy.</span><br />
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<span style="color: yellow; font-size: large;"> I don't know who reads this blog but it somehow makes things easier knowing that there are people out there who know what we are going through and have helped carry me through this process with the support of just reading what I have to say. We have received so much support and so many of my prayers have been answered by such wonderful people, some whom I have never even met in person. I am in awe of the generosity we have received and the many amazing friendships I have been able to make throughout this process. I have come to really know that you can never really fully understand pure joy and happiness without experiencing pain and sadness. It just makes you appreciate things so much more and look at the world so differently. Thank you to everyone that has helped ease the pain and burden that having a child with cancer brings. I just cant imagine going through this alone. Thank you just doesn't seem like enough though. I wish I could personally hug and thank each and every person that has been there for us through this cancer journey, but I cant. There are far more people than I can count that will forever hold a special place in my heart.</span><br />
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<span style="color: yellow; font-size: large;">We are still far from done with cancer. Skyler still has another year and a half of chemotherapy treatments if everything continues as planned, but for now our lives need to be focused on moving on and beginning this new exciting chapter of our lives. I am still very involved with CureSearch though and still have our team for the walk. I have a page set up on facebook to keep everyone updated on the walk and helping people get registered for Team Super Skyler so you can still follow us there </span><a href="http://www.facebook.com/#!/teamsuperskyler"><span style="color: red; font-size: large;">http://www.facebook.com/#!/teamsuperskyler</span></a><br />
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<span style="color: yellow; font-size: large;">And to my amazing, strong, courageous, funny, handsome sweet boy with a heart of gold, I LOVE YOU! I love you more than words can say, to infinity and beyond. You are a true superhero in every sense of the word. I am so proud and lucky to be your mother! I don't know what I did in our previous life to be able to get the privilege to be your mother but am so grateful. You are my life and I cant wait to see what this world has in store for you. It must be something amazing because you sure are here for a reason. You fought and beat all the odds that were stacked up against you. You can achieve anything you set your mind to sweet boy because you have already showed the world that you can!!</span><br />
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<span style="color: yellow; font-size: large;">Love,</span><br />
<span style="color: yellow; font-size: large;">Mom</span><br />
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</div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com22tag:blogger.com,1999:blog-718404646203790155.post-15824978701583149582012-07-20T23:21:00.004-07:002012-07-20T23:21:24.652-07:00<span style="color: yellow; font-size: large;">I cant believe another month has come and gone. That means one more IV chemo down and crossed off the list. This month Skyler got a break from his lumbar punctures and only had to go in to get Vincristine through his line. We were in and out within 20 minutes! That is record time for us. Skyler's foot has still been hurting him alittle but Dr. Lemons was able to move it ok so he wasn't too concerned. Since his bones are so weak it will just take time for the pain to go away. His ANC was also too high again so they upped the dosage of his oral chemo. Other than that everything went really well. He is doing great!</span><br />
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<span style="color: yellow; font-size: large;">This summer we have alot of Skyler's cancer buddies that he was diagnosed close to that are finishing their journey with cancer and are able to go off treatment. In fact, the day we were in clinic our close friend finished her very LAST IV chemo! Most of these kiddos are girls because girls only do two and a half years and boys do three and a half, but it makes me so happy to see them move on to the next phase of their lives. A phase where chemo and pokes and pain aren't apart of it. It gives me hope and lets me see that there is a light at the end of the tunnel. Skyler still has another year and half of treatment left. That may sound like a long time for people, but since we have already been doing this for two years I know we can do it. Today I was at home depot and saw one of Skyler's dialysis nurses from way back at the beginning when he was so sick. It's always nice to be able to see people who were there at our lowest point, my rock bottom and then to see us today living life and doing well. I am so grateful to each and every one of those people that helped make that possible for us! </span><br />
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<span style="color: yellow; font-size: large;"> We have some big changes coming up next week that are going keep us busy. First, we will be moving. Our house we are renting now is infested with ants and I just cant have Skyler living in that environment. We have already sprayed a couple times and I'm not willing to expose him to anymore of those chemicals, so our only option was to move. I like change so I'm kind of excited about it. Second, Skyler will be starting kindergarten! I cannot believe that this time has come. I remember last year when he was supposed to start and thinking there was no way I could ever send him into a germ infested atmosphere, but we are in such a different place both physically and mentally that I'm not really nervous about it. I'm just SO EXCITED for him!! I know I should probably be nervous but I have come to accept that there are just things that I cant control. I know it is a possibility he will catch something but we will cross that bridge when we get to it. This is going to be so good for him and I just cant stop smiling when I think about him sitting in a classroom with a room full of friends learning how to read, do math, etc. He loves learning and know he is just going to love it!</span><br />
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<span style="color: yellow; font-size: large;">I didn't get any clinic pictures this time but here are some pictures from our first trip at the zoo since dx. We went with all his cousins and he loved it!</span><br />
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<a href="http://4.bp.blogspot.com/-lUAKdI7MOAA/UApJzklzblI/AAAAAAAACSU/zeGdt2DcMqY/s1600/DSC_0995.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://4.bp.blogspot.com/-lUAKdI7MOAA/UApJzklzblI/AAAAAAAACSU/zeGdt2DcMqY/s640/DSC_0995.JPG" width="640" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-73292545785893657332012-07-08T12:30:00.001-07:002012-07-08T12:30:14.480-07:00<span style="color: yellow; font-size: large;">This summer has been wonderful so far. Skyler has been having alot of fun playing and being active. He doesn't hold back. He jumps off anything he can and runs all over the place. It was only a matter of time before he got too brave and hurt himself. The other day he was running down the stairs and took a tumble landing on his foot. I was hoping that after resting it for a bit he would be ok, but in the morning he still couldn't walk or put any pressure on it. He had to crawl or be carried everywhere so we ended up in the ER getting xrays. Thankfully it wasn't broken, just really bruised. We also found out that he is very osteopenic. If you took an xray of my foot the bones in the xray would be all white. In Skyler's you could really only see the outline of his bones and they were hardly white at all. The chemo has really taken a toll on his little body and it makes me so sad. This was just another reminder that there is still poison killing the good as well as the bad in his body. </span><br />
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<span style="color: yellow; font-size: large;">He has finally been able to put pressure on it and has started walking again, but it still looks swollen and hurts him all the time. We have clinic in a couple of weeks so we will follow up with his oncologist about it then. Even though he is in pain it hasn't slowed him down. I think he is just so used to hurting that his pain tolerance has increased and he has just learned how to live with it. I cant wait for the day when pain isn't apart of his daily life and this all becomes a distant memory to him.</span><br />
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<span style="color: yellow; font-size: large;"> Waiting in the ER for xrays.</span><br />
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<span style="color: yellow; font-size: large;">Well they found a match for her through donated cord blood and is recovering from her transplant right now. Im so happy they found a match for her. Today friends and family put together a big princess 5K for her...because Cancer is a Royal Pain....and Skyler was able to be a part of it. There is a non-profit organization called Push To The Finish who are runners that push kids who arent able to run in races themselves. They make it so kids that arent able to run due to sickness, or being in a wheelchair etc. can experience running in a race and crossing that finish line. They really are an amazing organization! When I got the email about what they do I knew Skyler would love to be a part of it. He loves races but still isnt physically on the same level with kids his age and sometimes cries to me about how he hates being the slowest and never winning a race. So I was very excited to tell him that he was going to be able to run/be pushed in a 5K.</span><br />
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<span style="color: yellow; font-size: large;">The guy pushing him stopped before the finish line and let Skyler get out and finish the rest of the race himself. It made me one HAPPY and PROUD momma to see this! My mom was with me and started bawling, and I was grateful for the sunglasses I wore to cover the tears that were welling up in my eyes. This was such a big moment for him. Thank you Push To The Finish and everyone involved with putting together this wonderful event for making this possible for my little guy.</span><br />
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<span style="color: yellow; font-size: large;"> This is the guy who pushed Skyler. He is amazing!!</span><br />
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<br /><span style="color: yellow; font-size: large;">This is when he let him out to run across the finish line himself. Look at him go!</span></div>
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<br /><span style="color: yellow; font-size: large;">LOVE this picture of him about to finish the race....and with a smile on his face!</span><br />
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<span style="color: yellow; font-size: large;">These are the other little kiddos that were able to do the race too. It was the cutest thing to see.</span></div>
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<span style="color: yellow; font-size: large;">Here is the video of him running...</span></div>
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<a href="http://youtu.be/kE_4knMD2Ws"><span style="color: red; font-size: x-large;">http://youtu.be/kE_4knMD2Ws</span></a><br />
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<em> </em>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com8tag:blogger.com,1999:blog-718404646203790155.post-81974532659945750362012-06-22T16:08:00.003-07:002012-06-22T16:08:22.888-07:00<span style="color: yellow; font-size: large;">This week we were able to do something that Skyler has been looking forward to for many months. He was able to go to Camp Hobe, a summer camp for cancer kiddos and their siblings. I learned about Camp Hobe last year when some of his cancer buddies went, but we were still in the part of our journey where that wasn't even a possibility for us. In fact I couldn't even wrap my head around how people could send their cancer kid to camp while still on treatment. We are in such a different place now physical, mentally and emotionally that this was something I was looking forward to this year. There is an option for them to stay at camp for an entire week but I chose to just do day camp which is two days. Instead of driving home each night, a bunch of us cancer moms got a hotel to stay in. Skyler was pretty nervous about going to camp while we were driving down there, but as soon as we got there and he got a cool shirt, hat, pin and backpack and a counselor took his hand to go play all of his fears left and he walked away with a huge smile on his face. I had the option of staying with him and watching but he was having so much fun that I just left and went to a park with some of the other moms. The second day he actually told me to please leave...it was so funny. They had fun activities and things to do with the kids the whole time. It was two days packed full of fun. On the way to camp the second day I heard words that I never thought I would hear anyone say let alone my own son. He said "Mom, I'm actually really glad I have cancer because I get to go to Camp Hobe!"</span><br />
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<span style="color: yellow; font-size: large;">These are some fellow cancer moms and some of the most AMAZING women I have ever met.</span> </div>
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<span style="color: yellow; font-size: large;">These three boys played together so well and are some of Skyler's favorite little cancer buddies!</span><br />
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<span style="color: yellow; font-size: large;">Because most of these kids are still in treatment there are nurses from ICS that volunteer to be at camp. This is Kathy, one of our favorite nurses in ICS</span><br />
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<span style="color: yellow; font-size: large;">This is also another one of our favorite nurses, Amber. She is so sweet! It was so nice to see these familiar faces outside of the hospital and it was awesome for them to be able to see Skyler running around and playing like any other kid his age.</span><br />
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<span style="color: yellow; font-size: large;">Don't worry that isn't lipstick on his lips, just a Popsicle. This is on a bunk bed inside his group's cabin</span><br />
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<a href="http://1.bp.blogspot.com/-_46lUl4lrxE/T-Tm_kHe2nI/AAAAAAAACNc/1azrGWNaYv4/s1600/DSC_0569.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-_46lUl4lrxE/T-Tm_kHe2nI/AAAAAAAACNc/1azrGWNaYv4/s640/DSC_0569.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">In the back in the blue hat is one of Skyler's oncologists, Dr. Wright. We love her and I'm so glad she was there to see Skyler having fun and talking.</span><br />
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<span style="color: yellow; font-size: large;">I never thought I would ever let Skyler swim while on treatment and especially with a PICC line, but all of his other cancer buddies were (most have ports which they can swim with) so I let him get in. I just wrapped his arm with saran wrap and put his sleeve back on and just told him to make sure that his arm didn't get in the water. I decided before we left for camp that I was going to do whatever it took to make sure he had fun and felt like a "normal" kid while we were at camp. That smile on his face made everything worth it! He was so excited to be able to get in a swimming pool again.</span><br />
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<a href="http://1.bp.blogspot.com/-4ELy1qkutjU/T-TnUF2t5AI/AAAAAAAACNs/gbt_IBF-klc/s1600/DSC_0596.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-4ELy1qkutjU/T-TnUF2t5AI/AAAAAAAACNs/gbt_IBF-klc/s640/DSC_0596.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">This is one of my favorite pictures. That girl in the picture with him is Brielle. She just got done with her SECOND bone marrow transplant because she relapsed. This was her very first time in a swimming pool too since she was diagnosed. So this picture is very special to me. Both of these kiddos have been at deaths door and back. They are amazing little fighters!!</span><br />
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<span style="color: yellow; font-size: large;">Skyler was so excited to be able to stay in a hotel again. This is another thing I cant believe we did but it was SO MUCH FUN!</span> <br />
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<span style="color: yellow; font-size: large;">This was Skyler's favorite thing about camp....the zip line! He was looking forward to it the whole time and it just made his day getting all strapped in with with his helmet and harness. Since he didn't want me to stay with him at camp I didn't get to see any of the activities they did, but on the last day I decided to go an hour before camp was over and watch him. I hid behind a tree the whole time so he wouldn't see me. I'm so glad I was able to see him do this. I totally started bawling, good thing I had my sunglasses on. I cant thank Camp Hobe and all the volunteers enough for what they gave to my son. They made him feel like a completely normal kid. Its a place where we all know what each other has gone through and is going through. They all know what PICC lines are and hearing aids are and no one gets any weird stares because they look a little different. I will forever hold a very special place in my heart for Camp Hobe!</span><br />
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<span style="color: yellow; font-size: large;"> I love this picture...he looks so cute!!!!</span><br />
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<br /><span style="color: yellow; font-size: large;">This is Sky doing the zip line...</span></div>
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<span style="color: yellow; font-size: large;"> Look at that smile!!</span><br />
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<span style="color: yellow; font-size: large;"> Skyler's cabin.</span><br />
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<span style="color: yellow; font-size: large;">The guy with the pink bandanna is another nurse at ICS named Mitch. We love him, he is so good with the kids.</span><br />
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<span style="color: yellow; font-size: large;">These are some of the BRAVEST, STRONGEST AND CUTEST kids ever!!!!</span><br />
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<span style="color: yellow; font-size: large;">These fellow cancer moms are a huge support and blessing in my life. I don't think I would be were I am today without them in my life helping me get through this cancer journey. They all "get it."</span><br />
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<span style="color: yellow; font-size: large;"> Love this kid! Im so proud of you buddy :)</span><br />
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<span style="color: yellow; font-size: large;">When it was time to head home we stopped at a little candy shop in town with a fellow cancer fighter Daphne. Skyler loves her and they had a lot of fun picking out their candy. </span><br />
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<span style="color: yellow; font-size: large;"> I think I was just as excited to be in that store as they were. </span><br />
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<br />Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com4tag:blogger.com,1999:blog-718404646203790155.post-7581139450194665042012-06-16T23:29:00.000-07:002012-06-16T23:29:11.316-07:00<span style="color: yellow; font-size: large;">Our fundraiser garage sale turned out great! Thank you so much to everyone who helped make this a success. We had SO much stuff and actually have some great things left over so we are going to do another one at my house next week. I love being able to do things like this, its my way of fighting back. As a mother if someone hurt my child, I mean REALLY hurt my child, my first reaction would be to fight back and turn into the mama bear that protects her cubs. Cancer has hurt my child. Cancer has made my suffer unbelievable amounts of pain and sickness. Doing everything I can to help find a cure for this evil disease is my way of fighting back. Skyler always says he wishes he could punch cancer in the face, this is me punching cancer in the face as hard as I can! Thank you to everyone who has helped me make this possible and for the overwhelming support we have received.</span><br />
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<a href="http://4.bp.blogspot.com/-RAqKtMcTz8E/T914xzxIURI/AAAAAAAACMY/b0wFxP6uvaA/s1600/2012-06-16+08.55.46.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://4.bp.blogspot.com/-RAqKtMcTz8E/T914xzxIURI/AAAAAAAACMY/b0wFxP6uvaA/s640/2012-06-16+08.55.46.jpg" width="640" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-69469439138294602082012-06-15T11:01:00.001-07:002012-06-15T11:01:31.650-07:00<span style="color: yellow; font-size: large;">To help raise money for Team Super Skyler we are have a BIG garage sale tomorrow June 16th at Fox Hollow Park from 8am to 1pm, 655 North Fox Hollow Drive in North Salt Lake. We have a ton of great stuff! We will also have more information about CureSearch and you can also have us sign you up for the walk if you haven't already. And big thank you to those that have donated items!!! I hope to see you all tomorrow!</span><br />
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</div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-78637574123995058182012-06-11T21:15:00.000-07:002012-06-11T21:28:24.281-07:00<span style="color: yellow; font-size: large;">Today was daddy's birthday so Skyler decided that we needed to celebrate with balloons and cake. He picked out a cute watermelon cake and some balloons and we went home and sang Happy Birthday and let the balloons go up to heaven. Then Skyler cut us both a big piece of cake to eat while we watched the balloons disappear into the sky and into daddy's arms.</span><br />
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<span style="color: yellow; font-size: x-large;"> HAPPY BIRTHDAY BEN!!! WE LOVE YOU!</span><br />
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<br /></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-80759588571164801082012-06-08T19:08:00.000-07:002012-06-08T19:08:44.276-07:00<span style="color: yellow; font-size: x-large;"> SUMMER FUN....</span><br />
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<a href="http://3.bp.blogspot.com/-SgOKJF3FVLk/T9KqrVYeoaI/AAAAAAAACKQ/mtQ0GtOsN2E/s1600/DSC_0454.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://3.bp.blogspot.com/-SgOKJF3FVLk/T9KqrVYeoaI/AAAAAAAACKQ/mtQ0GtOsN2E/s640/DSC_0454.JPG" width="640" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com5tag:blogger.com,1999:blog-718404646203790155.post-59579467931084797192012-05-31T22:19:00.001-07:002012-05-31T22:24:01.848-07:00<span style="color: yellow; font-family: Calibri; font-size: large;">I'm sure I have bugged everyone enough about CureSearch for the month, but I'm super excited about this and want to share with everybody. To help raise money for our team this year </span><br />
<span style="color: yellow; font-family: Calibri; font-size: large;"> we’re partnering with Sara Talbot, an amazing local Thirty-One sales
consultant.<span style="mso-spacerun: yes;"> </span>Thirty-One offers a huge
variety of amazing, high-quality bags, totes and organizers.<span style="mso-spacerun: yes;"> </span>Sara will be donating 25% of all sales
completed between June 1-15, 2012.<span style="mso-spacerun: yes;"> </span>This
is a great opportunity to treat yourself or somebody you know while
contributing to our special cause at the same time! I have one of these bags myself and have fallen in love with it. If you haven't heard of Thirty-One before please go and check it out, its such fun stuff. My favorite part is that you can personalize almost anything which makes it that much more special. These would also be great gifts. Skyler starts kindergarten in July and is so excited because I told him he could get one of the backpacks with his name on it! </span><br />
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<o:p></o:p><span style="font-family: Calibri;"><span style="font-size: large;"><span style="color: yellow;">Here are
some important details regarding the ordering process:<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">All orders must be received by 12:00 noon on
June 15<sup>th</sup><o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">All orders must be placed online by following
these steps:<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="mso-bidi-font-family: Calibri; mso-bidi-theme-font: minor-latin;"><span style="mso-list: Ignore;"><span style="font-family: Calibri;">1.</span><span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">Visit </span></span></span><a href="http://www.mythirtyone.com/99996"><span style="color: red; font-family: Calibri; font-size: large;">www.mythirtyone.com/99996</span></a><o:p></o:p></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="mso-bidi-font-family: Calibri; mso-bidi-theme-font: minor-latin;"><span style="mso-list: Ignore;"><span style="font-family: Calibri;">2.</span><span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">Click on the ‘My Parties’ tab<o:p></o:p></span></span></span></div>
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<div class="MsoListParagraphCxSpMiddle" style="margin: 0in 0in 0pt 0.75in; mso-add-space: auto; mso-list: l4 level1 lfo1; text-indent: -0.25in;">
<span style="font-size: large;"><span style="color: yellow;"><span style="mso-bidi-font-family: Calibri; mso-bidi-theme-font: minor-latin;"><span style="mso-list: Ignore;"><span style="font-family: Calibri;">3.</span><span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">Choose ‘Shop Now’ under the CureSearch
Fundraiser event<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">The preferred shipping method for this event is
to have items shipped directly to your home.<span style="mso-spacerun: yes;">
</span>This will incur an additional shipping charge of $4 per order.<span style="mso-spacerun: yes;"> </span>OR, If you live close enough and make prior
arrangements, you can choose the ‘Ship to Hostess’ option and pick up your
items at my home at no additional shipping charge.<o:p></o:p></span></span></span></div>
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<span style="font-family: Calibri;"><span style="font-size: large;"><span style="color: yellow;">A few extra
perks!<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">Personalized monogramming is available on most
items for only $7<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">Thirty-One’s special for the month of June is:<o:p></o:p></span></span></span></div>
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<span style="font-family: Calibri;"><span style="font-size: large;"><span style="color: yellow;">For every $35 you spend, get a Large Utility Tote for only
$10!<span style="mso-spacerun: yes;"> </span>This is one of their most popular
items and its uses are just endless. (The price adjustment will be made
automatically during your online order)<o:p></o:p></span></span></span></div>
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<span style="font-size: large;"><span style="color: yellow;"><span style="font-family: Symbol; mso-bidi-font-family: Symbol; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-family: "Times New Roman"; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal;">
</span></span></span><span style="font-family: Calibri;">For anybody else who may want to host their own
in-home party with Thirty-One and help Skyler raise even more money, contact
Sara today.<span style="mso-spacerun: yes;"> </span>For each party booked before
July 31, Sara will be donating 10% or all sales to CureSearch!<span style="mso-spacerun: yes;"> </span>Plus, you’ll earn all the amazing hostess
benefits, which include free and half price items!<o:p></o:p></span></span></span></div>
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<span style="color: yellow; font-family: Calibri; font-size: large;">For more
information or to book a party, contact Sara or me today! </span></div>
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<span style="font-family: Calibri;"><span style="font-size: large;"><span style="color: yellow;">801-755-6118<o:p></o:p></span></span></span></div>
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<a href="mailto:Saratalbot05@gmail.com"><span style="color: red; font-family: Calibri; font-size: large;">Saratalbot05@gmail.com</span></a></div>
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<a href="mailto:crystaln_isaacson@yahoo.com"><span style="color: red; font-size: large;">crystaln_isaacson@yahoo.com</span></a></div>
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<br />Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-91434993695876246442012-05-30T14:55:00.001-07:002012-05-30T14:55:07.896-07:00<span style="color: yellow; font-size: large;">This little girl needs your prayers today. Millie was one of the first little girls that I met and followed her blog when Skyler was diagnosed. At the beginning of the year she was done with treatment and celebrated with friends and family because she was DONE WITH CHEMO. A few days later they found out she had relapsed and that she needed a bone marrow transplant. She was supposed to be done with her transplant already but instead had to do another round of chemo because they hadn't gotten rid of all the Leukemic cells yet. Tomorrow she will have a bone marrow aspirate to see if she is in remission and can go ahead with her transplant. She needs all the prayers she can get. She is the sweetest most beautiful little girl and her smile just lights up a room. Love you Millie!!!!</span><br />
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<a href="http://1.bp.blogspot.com/-x2zq0ox4Nj0/T8aXKxs9u-I/AAAAAAAACIc/wNJdOrw8cIU/s1600/millie.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="265" src="http://1.bp.blogspot.com/-x2zq0ox4Nj0/T8aXKxs9u-I/AAAAAAAACIc/wNJdOrw8cIU/s400/millie.jpg" width="400" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com1tag:blogger.com,1999:blog-718404646203790155.post-21597033991238121492012-05-28T17:28:00.003-07:002012-05-28T17:28:50.499-07:00<span style="color: yellow; font-size: large;">On Friday Skyler and I had the wonderful opportunity to watch the Thunderbirds air show at Hill Air Force Base with Make-A-Wish. I was really excited for this mostly because men in uniform aren't so bad to look at..haha. I have never seen the air show before so I didn't know what a treat we were in for. We all met in a parking lot and then were transported onto the base by bus. They had special seating for us right up close to everything. It was truly one of the coolest things I have ever seen! They even pinned a Thunderbirds pin on each of the wish kids and gave them each a cool little airplane. Skyler was in heaven and said this was the bestest day ever! After the show was over the pilots and his crew came over and signed autographs for the kids. They were all so nice and it was amazing to see all the kids faces light up. Since Skyler is so shy around new people I didn't think he would want to go up and get autographs, but he walked up to each pilot all by himself and stood with his book out until they signed it. It was so funny and super cute. I am so grateful for the opportunity we had to go to the air show and for the kindness everyone showed us. Make-A-Wish sure knows how to put smiles on kids faces!! And the Air Force sure knows how to put a smile on mine :)</span><br />
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<span style="color: yellow; font-size: large;">This was on the bus ride up there. It was his very first time on a bus so he was really excited.</span></div>
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<a href="http://2.bp.blogspot.com/-jCI-Ul2YRB4/T8QS7eyrjAI/AAAAAAAACGc/nyV_AW1g3EA/s1600/2012-05-25+13.29.24.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://2.bp.blogspot.com/-jCI-Ul2YRB4/T8QS7eyrjAI/AAAAAAAACGc/nyV_AW1g3EA/s640/2012-05-25+13.29.24.jpg" width="640" /></a></div>
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<span style="color: yellow; font-size: large;"> Watching the AMAZING air show!!</span><br />
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<a href="http://1.bp.blogspot.com/-uobm8GmqGnM/T8QS-bAb89I/AAAAAAAACGk/w6kX--LGCDI/s1600/2012-05-25+14.20.30.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://1.bp.blogspot.com/-uobm8GmqGnM/T8QS-bAb89I/AAAAAAAACGk/w6kX--LGCDI/s640/2012-05-25+14.20.30.jpg" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">I didn't even think about bringing him sunglasses so here he is sporting mine and his good looking ear plugs. It was so loud.</span><br />
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<a href="http://1.bp.blogspot.com/-CewBkC7BCs0/T8QTCezadBI/AAAAAAAACGs/rnlH2lN73JY/s1600/2012-05-25+14.33.25.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://1.bp.blogspot.com/-CewBkC7BCs0/T8QTCezadBI/AAAAAAAACGs/rnlH2lN73JY/s640/2012-05-25+14.33.25.jpg" width="640" /></a></div>
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<span style="color: yellow; font-size: large;"> Here he is getting his pin. He is so proud of that thing.</span><br />
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<a href="http://2.bp.blogspot.com/-u38KeTzfELw/T8QTGdjWbCI/AAAAAAAACG0/LxydcV41sV0/s1600/2012-05-25+15.02.45.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://2.bp.blogspot.com/-u38KeTzfELw/T8QTGdjWbCI/AAAAAAAACG0/LxydcV41sV0/s640/2012-05-25+15.02.45.jpg" width="640" /></a></div>
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<a href="http://4.bp.blogspot.com/-g-bSvE4XbyE/T8QTJWfrd-I/AAAAAAAACG8/4510BTMV6qY/s1600/2012-05-25+15.02.53.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://4.bp.blogspot.com/-g-bSvE4XbyE/T8QTJWfrd-I/AAAAAAAACG8/4510BTMV6qY/s640/2012-05-25+15.02.53.jpg" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">I absolutely LOVE this picture! His smile is priceless and he was so excited to be able to get his picture taken with him. He hates getting his picture taken so you can tell just how cool he thought this was.</span><br />
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<span style="color: yellow; font-size: large;">One of the neatest things for me was learning that one of the pilots was a girl. I think that is the coolest thing.</span><br />
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<span style="color: yellow; font-size: large;">Aside from the air show Skyler has had a rough week. He is having alot of major headaches and leg pain. He has also been nauseous on and off. I have had to give him pain medicine around the clock and he usually wakes up needing a barf bucket. Last night I even had to carry him into the bathroom because he couldnt walk by himself. I just dont know what to make of it. He isnt fevering so I havent had to take him in, but Im getting really worried. I know vincristine can cause leg pain but that doesnt explain the headaches. I hope its just some sort of virus and things will go back to normal pretty soon. Its really hard seeing him sick and in so much pain. He told me today "Mommy I wish cancer didnt even exist." I cannot tell you how much I wish that also. </span><br />
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<span style="color: yellow; font-size: large;">Today we were riding in the car on the way to pick up some donations for our garage sale and I was explaining to him about why we are doing the walk and why the money we raise is going to go to the scientist to help find a cure for childhood cancer. After I was done he said to me "I think I should write the scientists a note and say..Are you done yet? It was so funny yet sad at the same time. I wish they were done finding a cure also, and I so badly wish it had been before Skyler knew so personally the meaning of pain and suffering.</span> Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-13025828291404311622012-05-22T21:54:00.000-07:002012-05-22T21:54:06.927-07:00<span style="color: yellow; font-size: large;">Today was another clinic visit, and to Skyler's delight he got to have a back poke. Crazy kid, I cant believe how excited he gets for his LP's now. He just has so much fun playing with Lindsey (the child life specialist) and the helicopter in the RTU. I am just an onlooker now in RTU while Skyler skips in the room, hops on the bed, and plays with his helicopter while being put out with the "sleepy medicine." He is such a different kid now and its crazy to think that he once had to have me hold him tight and bury his head on my shoulder while falling asleep so he wouldn't have to look at anyone. I also remember reading other cancer cuties blogs and their mothers telling how their child looked forward to going to clinic. I never in a million years thought Skyler and I would be the same way, but it happened. Skyler actually looks forward to it now. We are so blessed that things are going so well! Sometimes its still hard to believe that things are going well for us and I'm just waiting for the other foot to drop, but then I just have remind myself to enjoy the moment. I don't know what the future holds for Skyler, all I can do is be grateful for where we are at now and live in the moment.</span><br />
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<span style="color: yellow; font-size: large;">All of Skyler's labs looked great today except for his ANC which was way too high at 6.9. They upped his oral dose of methotrexate to see if we can get it to come down into the right range. It should be anywhere from .8 to 1.5. Hopefully next month his ANC will drop, if not then they will up the dose of his 6MP as well.</span><br />
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<span style="color: yellow; font-size: large;">Also, I have to say a big thank you to Tim Nestoryack and his daughter for running the Ogden marathon while wearing Skyler's shirts. Tim even gave Skyler his medal he got! This made Skyler one happy little boy. He is so proud of that medal and is wearing it all over the place! </span><br />
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<span style="color: yellow; font-size: large;">This picture brings tears to my eyes. I am so very grateful for the love and support Skyler has received. This journey would have been so much harder without such wonderful and good people to help us through.</span><br />
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<span style="color: yellow; font-size: large;"> Thank you Tim for bringing this smile to Skyler's face!!</span><br />
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<a href="http://1.bp.blogspot.com/-aJGIzCFWiTM/T7xqopyc3NI/AAAAAAAACGA/x_8TdJVsoek/s1600/DSCF0037.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="http://1.bp.blogspot.com/-aJGIzCFWiTM/T7xqopyc3NI/AAAAAAAACGA/x_8TdJVsoek/s640/DSCF0037.JPG" width="592" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-4751455142922791192012-05-20T14:23:00.001-07:002012-05-20T14:23:46.626-07:00 <span style="color: yellow; font-size: large;">Sometimes I think of cancer as a big tornado.</span><br />
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<a href="http://3.bp.blogspot.com/-kGh1M2dH5Y4/T7lgWlTnlII/AAAAAAAACFQ/GIPenz4V1LM/s1600/tornadogood.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="http://3.bp.blogspot.com/-kGh1M2dH5Y4/T7lgWlTnlII/AAAAAAAACFQ/GIPenz4V1LM/s640/tornadogood.jpg" width="640" /></a></div>
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<span style="color: yellow; font-size: large;"> It's destructive and deadly and affects everyone in its path. It doesn't discriminate. It can destroy and take the lives of young or old, black or white, big or small. Picture a big tornado coming toward you. Who would you protect first? Would you run away and leave the kids to find a way to get out of its path on their own? Like most people, I know I would do anything and everything to make sure my child was safe first before anything else. So why is it that we are leaving our children out in the open and in the tornado's path when it comes to finding a cure? It just doesn't make sense to me and it makes me so sad. This week I have learned that three of Skyler's cancer buddies have been put on hospice. One of them actually left this earth this morning and the other two aren't far beyond. Their bodies are weakening as the cancer takes over. It just isn't fair. They should be up and running around and playing like kids should. The pain their families must be feeling is beyond words and it hurts me knowing that. It hurts knowing that if we had put more attention on finding a cure for childhood cancers like we do for others, that their lives might have been spared.</span><br />
<span style="color: yellow; font-size: large;">Please take a moment to hug your children a little tighter. There is a mother out there today that doesn't get that opportunity anymore.</span>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-71824441339797290382012-05-16T22:38:00.002-07:002012-05-16T22:50:00.657-07:00<span style="color: yellow; font-size: large;">It's getting closer to that time of year again, our second annual CureSearch Walk! This year it will be on September 29th in Sugar House park. Just in time for childhood cancer awareness month. Last year was our very first CureSearch walk here in Utah and we raised over $70,000! That's incredible for our first year. CureSearch is such a wonderful organization and is something I have become very passionate about and has become close to my heart. I am on the committee this year and it's going to be so much fun. It will be very family friendly and we will have fun things for the kids to do including balloon animals, face painting, a fish pond, games etc. Each year it is going get bigger and better and Im very grateful and priveledged to be a part of something so amazing!</span><br />
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<span style="color: yellow; font-size: large;">For those of you who dont know who CureSearch is, they a national non-profit foundation whose
mission is to fund and support children's cancer research and provide
information and resources to all those affected by children's cancer. CureSearch
supports clinical trials research at more than 175 local hospitals across the
United States. These hospitals participate in National Cancer Institute
sponsored clinical trials conducted by the Children's Oncology Group. Through
the CureSearch Investigational Research Initiative, CureSearch also funds basic
and translational research that offers the greatest potential to design
treatments and improve outcomes for children with difficult-to-treat
cancers.</span><br />
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<span style="color: yellow; font-size: large;">CureSearch raises funds through individuals, special events, corporations,
and private foundations. Charitable giving is especially important now, as
federal funding for children's cancer research has been flat for the last decade
and was reduced by five percent in 2011.</span><br />
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<span style="color: yellow; font-size: large;">CureSearch also manages the operations center of the Children's Oncology
Group, the largest cooperative research entity in the world! With more than
6,000 physicians, nurses and other researchers, COG member hospitals treat 90%
of children in the United States with cancer. </span><br />
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<span style="color: yellow; font-size: large;">I belong to a group of mother's who all have children with cancer and we all have done alot of research on CureSearch. 94% of all funds go toward childhood cancer research and 100% of donations from the walk go straight to finding a cure. Alot better than the 3% childhood cancers get from other organizations. We have all become very passionate about this organization and would love to have your support again this year. I have started another team, Team Super Skyler! I would love to have EVERYONE join our team. If you live out of state or can't make it to the walk that's ok, you can still register and join our team as a virtual walker. Anyone under the age of of 15 is free, but make sure to still register them on our team. My goal this year is to get 50 people on our team, but I know we can get so much more. How wonderful would it be to have these little cancer heros look around them and see all the many people who love and support them and are cheering them on while they are fighting for their lives? To join Team Super Skyler or make a donation please go to </span><a href="http://www.curesearchwalk.org/saltlakecity/superskyler"><span style="color: red; font-size: x-large;">http://www.curesearchwalk.org/saltlakecity/superskyler</span></a><br />
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<span style="color: yellow; font-size: large;">Thank you so much for all your support. It means so much to me and all the many children and families that this evil beast we call cancer affects. If you are a member of Facebook I made a page to keep everyone updated on the walk. </span><a href="http://www.facebook.com/#!/teamsuperskyler"><span style="color: red; font-size: x-large;">http://www.facebook.com/#!/teamsuperskyler</span></a><br />
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<span style="color: yellow; font-size: large;">This was our amazing team last year!</span></div>
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<span style="color: yellow; font-size: large;"> Skyler and his champion medal</span><br />
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<br />Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-6500000001534945492012-05-16T20:37:00.000-07:002012-05-16T20:37:20.544-07:00<span style="color: yellow; font-size: large;">Today was dressing change day. My mom was able to sit with Sky this time while I changed it so he did alot better. </span><br />
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<span style="color: yellow; font-size: large;"> After he was done he thought it would be fun to change grandma's dressing. He had to do everything just right.</span><br />
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<a href="http://3.bp.blogspot.com/-UAo70llJWcA/T7RrbaOFf3I/AAAAAAAACEs/iypp_6PuulU/s1600/DSC_0336.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://3.bp.blogspot.com/-UAo70llJWcA/T7RrbaOFf3I/AAAAAAAACEs/iypp_6PuulU/s640/DSC_0336.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">This video is hilarious to me (sorry mom) Skyler didn't even flinch when I took his dressing off and as you can see its a painful process.</span> <span style="color: yellow; font-size: large;">And this is without a tube jammed into her arm!</span><br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dz0QUdOpQuArn4mParqluQmOPnbClxW9chJx4TwHUEsSUaiE-QLk6fSqzGAeTITCo9dHYnif023xzusk1IXEQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-45368367797080238902012-05-14T15:42:00.006-07:002012-05-14T17:56:45.359-07:00<span style="color: yellow; font-size: large;">As you all know birthdays are a big deal to me. Growing up my mom always went out of her way to make them very special, so I have tried doing that for Skyler. Birthdays have become even more special to me since Skyler was diagnosed. Yesterday was Skyler's actual birthday, but since it was Sunday and also Mother's Day we decided to celebrate it on Saturday. Ever since we got Jagger Skyler has been really into puppies and wanted to have a puppy party. We invited his cousins over to Grandma's house for the party. Skyler has celebrated every birthday at grandma and grandpa's house and he didn't want this year to be any different. The one thing he really wanted was another bounce house. It's amazing to me that he can finally jump around again so I just couldn't say no. It makes me so happy to see him jumping around having so much fun with the other kids.</span><br />
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<span style="color: yellow; font-size: large;">These are the treats we had. Scooby-doo snacks, whoppers, and coca puffs. This was my favorite part :)</span></div>
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<a href="http://4.bp.blogspot.com/-vsEBOF_MzUM/T7Cbz7F730I/AAAAAAAACBQ/sO4eZ7no-DI/s1600/DSC_0013.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="640" src="http://4.bp.blogspot.com/-vsEBOF_MzUM/T7Cbz7F730I/AAAAAAAACBQ/sO4eZ7no-DI/s640/DSC_0013.JPG" width="424" /></a></div>
<span style="color: yellow; font-size: large;">I looked everywhere for puppy balloons but couldn't find anything so I decided to make my own. They turned out kinda cute. We got dog bowls for all the kids (new and clean) and put their names on them and decorated them with puppy stickers. That's what they ate their treats out of. For the drinks the kids drank toilet water. Don't worry it wasn't really toilet water, although a couple of the kids actually thought they were drinking real toilet water. Sorry parents :)</span><br />
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<span style="color: yellow; font-size: large;">Each kid got to adopt their own puppy too.</span> <br />
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<span style="color: yellow; font-size: large;"> This is Skyler's dog bowl. Can you tell he decorated it himself?</span><br />
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<a href="http://3.bp.blogspot.com/-rfbmBWDC-qE/T7Cc_VE3L9I/AAAAAAAACCI/sOmM_Gfz_nc/s1600/DSC_0192.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://3.bp.blogspot.com/-rfbmBWDC-qE/T7Cc_VE3L9I/AAAAAAAACCI/sOmM_Gfz_nc/s640/DSC_0192.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">We also played pin the paw on the doggie. I think I turned Skyler one too many times because he almost ran into that fence.</span><br />
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<a href="http://1.bp.blogspot.com/-ps58xFBiUsI/T7CdIO_z8xI/AAAAAAAACCQ/lgoo7siGvC0/s1600/DSC_0067.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="http://1.bp.blogspot.com/-ps58xFBiUsI/T7CdIO_z8xI/AAAAAAAACCQ/lgoo7siGvC0/s640/DSC_0067.JPG" width="424" /></a></div>
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<a href="http://1.bp.blogspot.com/-9CB83geFVuw/T7Cd4AnqegI/AAAAAAAACCk/uyKA_s4jD_c/s1600/DSC_0107.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-9CB83geFVuw/T7Cd4AnqegI/AAAAAAAACCk/uyKA_s4jD_c/s640/DSC_0107.JPG" width="640" /> </a><span style="color: yellow; font-size: large;">We had a puppy pinata too. Skyler was the first one to hit it and on the first swing he decapitated the puppy! Kinda funny. I decided it would be cute to do face painting too. This was my very first attempt at it. It was actually pretty fun and it didn't turn out too shabby if I do say so myself. I cant believe Skyler actually let me paint his face. He hates anything wet on his face. He makes a cute puppy though!</span></div>
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<span style="color: yellow; font-size: large;">In the picture above I told everyone to do sad puppy faces. I guess Skyler didn't get the memo on that one.</span></div>
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<a href="http://4.bp.blogspot.com/-f19ueNV16Wk/T7F_YrAHwrI/AAAAAAAACDU/4AvZu2klo_0/s1600/DSC_0206.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="424" src="http://4.bp.blogspot.com/-f19ueNV16Wk/T7F_YrAHwrI/AAAAAAAACDU/4AvZu2klo_0/s640/DSC_0206.JPG" width="640" /></a><a href="http://1.bp.blogspot.com/-7772jWXkm7s/T7F_kq50e9I/AAAAAAAACDc/a5GDeVratcE/s1600/DSC_0227.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-7772jWXkm7s/T7F_kq50e9I/AAAAAAAACDc/a5GDeVratcE/s640/DSC_0227.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">We also opened presents (I love the face in that picture) and had cake. Apparently I lost my mind for a minute and forgot to take the cake out of the cardboard box. The box almost went up in flames.</span><br />
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<span style="color: yellow; font-size: large;"> HAPPY 6 YEARS TO THE TOUGHEST KID I KNOW!!!!!</span><br />
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<a href="http://1.bp.blogspot.com/-jkXwwSr5rL0/T7GABkj6vTI/AAAAAAAACDw/u8SDBzson00/s1600/DSC_0305.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="640" src="http://1.bp.blogspot.com/-jkXwwSr5rL0/T7GABkj6vTI/AAAAAAAACDw/u8SDBzson00/s640/DSC_0305.JPG" width="424" /></a><a href="http://3.bp.blogspot.com/-tPDXJazBe8M/T7F_1reUhoI/AAAAAAAACDo/M2HOY5B_zaI/s1600/DSC_0274.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="http://3.bp.blogspot.com/-tPDXJazBe8M/T7F_1reUhoI/AAAAAAAACDo/M2HOY5B_zaI/s640/DSC_0274.JPG" width="424" /></a></div>
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<span style="color: yellow; font-size: large;">For Mother's Day Skyler surprised me with flowers, a card, a balloon, a singing bear, chocolate covered strawberries, a gift certificate to Wingers (his favorite place to eat) and a heart locket. He sure knows how to make his momma feel special and loved!! I love you with all my heart Skyler, to infinity and beyond!!</span></div>
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<a href="http://3.bp.blogspot.com/-WdjGl-HwI-4/T7GNIViuWrI/AAAAAAAACEE/3BCyy1eOsi0/s1600/20120512_114153.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://3.bp.blogspot.com/-WdjGl-HwI-4/T7GNIViuWrI/AAAAAAAACEE/3BCyy1eOsi0/s640/20120512_114153.jpg" width="640" /></a></div>
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<br />Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com4tag:blogger.com,1999:blog-718404646203790155.post-88542355913216977282012-05-07T22:55:00.000-07:002012-05-07T23:01:00.913-07:00<span style="color: yellow; font-size: large;">Our blood drive was a HUGE success! To be honest I was having bad dreams that no one would show up, but we ended up having close to 80 people come which was incredible. We collected 58 units of blood which will help save up to 116 patients! We also had 39 people sign up for the national bone marrow registry. So amazing! I am completely overwhelmed with gratitude at the love and support that we were shown. It was one of those days where I thought to myself "Life is GOOD, we are BLESSED!" </span><br />
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<span style="color: yellow; font-size: large;">I want to thank each and everyone of you that took the time out of your busy day to come celebrate Skyler's life with us by helping save other's. I am so blessed to have such wonderful support from so many people. There were even people who came who were afraid of needles and this was their first time donating, even people I didnt even know. That seriously means so much to me. I am sitting here with such a full heart and just cant find the right words to express how grateful I am for everyone. Thank you just doesn't seem like enough, but THANK YOU!!</span><br />
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<span style="color: yellow; font-size: large;"> Here is a glimpse of our day!</span><br />
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<span style="color: yellow; font-size: large;">These are the wonderful people from Be The Match</span></div>
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<a href="http://1.bp.blogspot.com/-uPV_1raEs74/T6isjaBYHkI/AAAAAAAACAI/9gUAsLBPyow/s1600/DSC_0640.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-uPV_1raEs74/T6isjaBYHkI/AAAAAAAACAI/9gUAsLBPyow/s640/DSC_0640.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">This cute girl is the one that took the amazing pictures I always use of Skyler when he was bald!</span><br />
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<a href="http://1.bp.blogspot.com/-c10oX39r0_s/T6isqWqF9CI/AAAAAAAACAQ/vT4_mcB1jOE/s1600/DSC_0641.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-c10oX39r0_s/T6isqWqF9CI/AAAAAAAACAQ/vT4_mcB1jOE/s640/DSC_0641.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">This is Nathanael one of Skyler's cancer buddies. I love this kid so much and he turned six the day before our drive. Birthdays are a big deal in the cancer world. Happy Birthday Bud!</span><br />
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<span style="color: yellow; font-size: large;">Yup that's me lounging out. I decided I wanted to see how comfy those chairs are, turns out VERY :)</span><br />
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<span style="color: yellow; font-size: large;">Me, Skyler and my mom sported these shirts. On the front it said Here's to many more Birthdays...</span><br />
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<a href="http://3.bp.blogspot.com/-U9OXyV3jRD8/T6iplwP8JbI/AAAAAAAAB9s/fQ6lSsYVGtU/s1600/DSC_0741.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://3.bp.blogspot.com/-U9OXyV3jRD8/T6iplwP8JbI/AAAAAAAAB9s/fQ6lSsYVGtU/s640/DSC_0741.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;"> Another strong cancer fighter, McKall!</span><br />
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<span style="color: yellow; font-size: large;">This is also a fellow cancer family. I admire this family so much.</span><br />
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<span style="color: yellow; font-size: large;">Also another cancer buddie! He has been off treatment for a year. Way to kick cancer's butt Parker!</span><br />
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<a href="http://4.bp.blogspot.com/-5ul-wG608os/T6ip5fAPm1I/AAAAAAAAB-I/lDeDFOC0sg8/s1600/DSC_0729.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://4.bp.blogspot.com/-5ul-wG608os/T6ip5fAPm1I/AAAAAAAAB-I/lDeDFOC0sg8/s640/DSC_0729.JPG" width="640" /></a></div>
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<span style="color: yellow; font-size: large;">We had a bounce house for all the kiddos while their parents were busy giving blood and swabbing cheeks. Skyler loved having friends to bounce around with.</span> <br />
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<span style="color: yellow; font-size: large;">Signing up for the registry!</span></div>
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<span style="color: yellow; font-size: large;"> Thumbs up for saving lives!!</span><br />
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<span style="color: yellow; font-size: large;">A smile on her face while getting poked!</span><br />
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<span style="color: yellow; font-size: large;">Here is my cute momma. She helped me put this whole thing together. I don't know what I would do without her.</span><br />
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<span style="color: yellow; font-size: large;"> The life saving process....</span><br />
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<span style="color: yellow; font-size: large;"> THANK YOU FOR HELPING MAKE THIS A SUCCESS!</span>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com5tag:blogger.com,1999:blog-718404646203790155.post-20636695464748184122012-05-03T22:06:00.004-07:002012-05-04T00:09:19.236-07:00<span style="color: yellow; font-size: large;">Dear Ben,</span><br />
<span style="font-size: large;"><br /><span style="color: yellow;"></span></span><br />
<span style="color: yellow; font-size: large;">I can't believe its been four years today since you have been gone. It still feels like yesterday that we said goodbye and Skyler and I gave you our last kiss as you lay there so still. I don't know why your journey here are earth was so short, perhaps it was to carry Skyler through his journey with cancer from heaven. Maybe it was your purpose to be with our son through those months in PICU when he was in his induced coma so you could comfort him and urge him to keep fighting. My only comfort through those agonizing days, weeks and months when his mind wasn't with me was knowing that he was probably getting to see his daddy again. Ben you would be so proud of our son. He is so strong and is handling everything that has been thrown at him with courage and an attitude that I know I couldn't have if I had to go through what he has been through. Its been so hard to do this without you, but its comforting to know that you are with him in a different sense and always watching over him. He is also so much like you. He has such a tender heart like you did. He loves giving presents and can never wait until the actual day of my birthday to give me his present, just like you. He also is so picky with his food and cant have anything touching each other on his plate. He definitely didn't get that from me because as you know I like to mush everything together. Its these little things that you used to do that make me smile and will always remind me of you.</span><br />
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<span style="color: yellow; font-size: large;">We went to your grave today and Skyler gave you a pinwheel and some butterflies to make you smile. Ben, he loves you with all his heart and misses you so much. He still remembers playing with the hair on your chin and playing hide and seek from grandma Kathy under blankets. He tells me everyday how much he misses and loves you. Sometimes he even starts crying and says he cant go to sleep without a daddy. I tell him that you are always with him and that if he closes his eyes he can dream about playing with you again. Skyler is also pretty sure that you are working on making him a game room in heaven, so just a heads up in case you haven't started it yet :)</span><br />
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<span style="color: yellow; font-size: large;">Ben I love you with all my heart. It will be a wonderful day in heaven when we get to see you again!</span><br />
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<span style="color: yellow; font-size: large;">Love and miss you,</span><br />
<span style="color: yellow; font-size: large;">Crystal</span><br />
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<a href="http://1.bp.blogspot.com/-pWPl5103ppU/T6Njj2jgwoI/AAAAAAAAB8g/0GCWCV3Fct4/s1600/DSC_0612.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="424" src="http://1.bp.blogspot.com/-pWPl5103ppU/T6Njj2jgwoI/AAAAAAAAB8g/0GCWCV3Fct4/s640/DSC_0612.JPG" width="640" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com10tag:blogger.com,1999:blog-718404646203790155.post-51749604055856603412012-05-01T19:47:00.002-07:002012-05-01T19:47:46.568-07:00<span style="color: yellow; font-size: large;">Skyler still has a cold, but we have managed to stay out of the hospital so I'd say he is doing great! He did get croupy one night but he was still able to breathe ok and he didn't spike a fever so I didn't take him in. He still has his cold symptoms but his body is handling it well so far. It's been a huge relief. He also has his best friend to cuddle with and help him feel better. Whenever he gets hurt or doesn't feel good he goes and grabs Jagger so Jagger can kiss (well its more just a lot of licking) him better. A little gross I know but oh so cute!! He LOVES his new buddy! I'd say getting Jagger was one of the best decisions I have made as his mother.</span><br />
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<a href="http://3.bp.blogspot.com/-DSE_7ccux9Q/T6CfTf128mI/AAAAAAAAB74/uWY9VX9rJWI/s1600/2012-04-19+12.41.33.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="http://3.bp.blogspot.com/-DSE_7ccux9Q/T6CfTf128mI/AAAAAAAAB74/uWY9VX9rJWI/s640/2012-04-19+12.41.33.jpg" width="640" /></a></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com1tag:blogger.com,1999:blog-718404646203790155.post-84765407984902629972012-04-27T12:53:00.003-07:002012-04-27T12:55:39.809-07:00<span style="color: yellow; font-size: large;">These months seem to be flying by lately. Tuesday we headed back up to clinic for more chemo. I was really happy Skyler only had to get Vincristine and no chemo in his spine, but when I told Skyler that he didnt have to get the sleepy medicine he started crying. Definitely not the response I was expecting. He looked at me totally bummed out and said "NOOO! I really want to have my backpoke mom." His reason why...he really wanted to play with the helicopter they have in there while he is getting his sleepy medicine. It was a little slap in the face and reminded me that he really is just a child. He just seems so much older to me with all the things he knows, has been exposed to, and has to do that sometimes I forget he is just a little boy. Its crazy that he has no problem having to go without food, get anesthesia and a giant needle stuck in his back if that means he gets to play with a toy. He seiously amazes me and I know I wouldnt be able to do what he has to do with the attitude he does it with. I read this saying the other day and it is so true for me. "Most people never get to meet their HEROS, I gave birth to mine."</span><br />
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<span style="color: yellow; font-size: large;">Despite not being able to play with his helicopter in RTU, Skyler did really well at clinic. His counts came back really high but not as high as they were last month. This just means that his body is still trying to fight off whatever infection he had when he had those fevers. They didnt bump up his oral chemo anymore because they are expecting his counts to drop back into normal range this month.</span> <br />
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<span style="color: yellow; font-size: large;">Physically Skyler has been doing really well until yesterday when he started coughing and sneezing and had a runny nose. I was hoping and praying it was just allergies or something, but throughout the night and this morning it has gotten worse. He has a full blown cold and Im afraid we might end up either in the ER with a fever or in ICS with croup. Before diagnosis Skyler's colds ALWAYS turned into croup and he always ended up in the hopsital getting breathing treatments and steriods. I pray his cough this time just stays a normal cough and that his body can fight this off like any other kid. It's a good thing his counts are high so they will help fight this cold before it turns into anything more. Before cancer I never in a million years thought a cold could bring this much anxiety, worry and panic.</span>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com2tag:blogger.com,1999:blog-718404646203790155.post-80209725693453177922012-04-19T21:56:00.001-07:002012-04-19T21:56:06.379-07:00<span style="font-size: large;"><span style="color: yellow;">Skyler's favorite song right now is Stronger by Kelly Clarkson. It's totally a breakup song but he doesn't know that. He says it makes him stronger every time he listens to it. On our last clinic appointment Skyler told me it was a good thing he listened to his song today because it made him stronger to get his chemo and sleepy medicin</span><span style="color: yellow;">e. I managed to sneak this video of him listening to the music video. This was his fourth time in a row.</span></span><br />
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<a href="http://youtu.be/5-LkV-WivOE"><span style="color: red; font-size: x-large;">http://youtu.be/5-LkV-WivOE</span></a><br />
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<br /></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com4tag:blogger.com,1999:blog-718404646203790155.post-51220468264894269722012-04-17T11:12:00.000-07:002012-04-17T15:30:50.600-07:00<span style="color: yellow; font-size: large;">I have been really busy lately and I have alot of stuff to catch up on, including Skyler' star raising party, but here are some pictures of some of the things we have been up to. Skyler has been doing really well and having fun playing with cousins. From the moment he wakes up he is on the go. His favorite thing to do now is go play at his cousins or both of grandma's houses by himself. Since I have been letting him do things without me sometimes he is taking full advantage of it. He loves feeling "normal" again. I read this off of another cancer buddies blog before he passed away and it really hit me hard. "What's the point of trying so hard to save our child's life if we don't let them live it?" That has stuck with me and its what I have been living by lately. This mother decided she wasn't going to keep her son in a bubble anymore, she was going to let him live his life. The following year he died. It just goes to show you never know what the future holds, so make the most of what you have today. </span><br />
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<span style="color: yellow; font-size: large;"> We went to Wheeler Farm with cousins...</span><br />
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<span style="color: yellow; font-size: large;">We had a WONDERFUL Easter! The picture above is Skyler and his two bestest buddies on Easter morning. I know that is not the most flattering picture of Jagger, kids cover your eyes.</span></div>
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<span style="color: yellow; font-size: large;">My mom had an Easter egg hunt and a treasure hunt at her house. This is Skyler's face when he saw all the eggs!</span></div>
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<span style="color: yellow; font-size: large;">Grandma gave all the kids sunglasses and towels for their prize after the treasure hunt. I think they like them!</span><br />
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<span style="color: yellow; font-size: large;"> All the grandkids! Skyler loves his cousins, he told my mom later that day that he wanted to erase the whole day so he could do it again.</span><br />
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<span style="color: yellow; font-size: large;">We also went to a Bee's baseball game. I love watching baseball so this was really fun for me. Skyler's favorite part were the treats and playing in the suite we had.</span></div>
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<br /></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com4tag:blogger.com,1999:blog-718404646203790155.post-44542137675794989072012-04-14T11:43:00.003-07:002012-04-14T11:43:50.072-07:00<span style="color: red; font-size: large;">CORRECTION: The universal blood type is O Negative not O Positive.</span> Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0tag:blogger.com,1999:blog-718404646203790155.post-48967595258105253742012-04-13T12:33:00.000-07:002012-04-13T12:33:12.938-07:00<span style="color: yellow; font-size: large;">I'm sure everyone is sick of me talking about this but its just so important to me. I made a video of some facts about donating blood. Before I was thrown into the cancer world and transfusions became a part of my everyday life, I didn't know much about giving blood except for it sounded scary. I thought only accident victims needed transfusions and that it didn't happen very often. Boy was I wrong! </span><br />
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<span style="color: yellow; font-size: large;"> We still have appointment times open, so if you are able please let me know and I'll put your name down. Walk-Ins are welcome but the process is faster with an appointment and I need to know how people are coming so we have enough staff. The best way to reach me is to text at 801-628-6768. Thank you so much for helping make this a success!</span> <br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwRYvmYU4cCId5xiV0VrW4AFEREbs-8pYf945uedAmWSILeWtGVrR7ypPtebIyW-MNuIRk3WTanMk0JYdNsrQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>Crystal and Skylerhttp://www.blogger.com/profile/11956898421955109853noreply@blogger.com0