Friday, July 20, 2012

I cant believe another month has come and gone.  That means one more IV chemo down and crossed off the list.  This month Skyler got a break from his lumbar punctures and only had to go in to get Vincristine through his line.  We were in and out within 20 minutes!  That is record time for us.  Skyler's foot has still been hurting him alittle but Dr. Lemons was able to move it ok so he wasn't too concerned.  Since his bones are so weak it will just take time for the pain to go away.  His ANC was also too high again so they upped the dosage of his oral chemo.  Other than that everything went really well.  He is doing great!

This summer we have alot of Skyler's cancer buddies that he was diagnosed close to that are finishing their journey with cancer and are able to go off treatment.  In fact, the day we were in clinic our close friend finished her very LAST IV chemo!  Most of these kiddos are girls because girls only do two and a half years and boys do three and a half, but it makes me so happy to see them move on to the next phase of their lives.  A phase where chemo and pokes and pain aren't apart of it.  It gives me hope and lets me see that there is a light at the end of the tunnel.  Skyler still has another year and half of treatment left.  That may sound like a long time for people, but since we have already been doing this for two years I know we can do it.  Today I was at home depot and saw one of Skyler's dialysis nurses from way back at the beginning when he was so sick.  It's always nice to be able to see people who were there at our lowest point, my rock bottom and then to see us today living life and doing well.  I am so grateful to each and every one of those people that helped make that possible for us! 

 We have some big changes coming up next week that are going keep us busy.  First, we will be moving.  Our house we are renting now is infested with ants and I just cant have Skyler living in that environment.  We have already sprayed a couple times and I'm not willing to expose him to anymore of those chemicals, so our only option was to move.  I like change so I'm kind of excited about it.  Second, Skyler will be starting kindergarten!  I cannot believe that this time has come.  I remember last year when he was supposed to start and thinking there was no way I could ever send him into a germ infested atmosphere, but we are in such a different place both physically and mentally that I'm not really nervous about it.  I'm just SO EXCITED for him!!  I know I should probably be nervous but I have come to accept that there are just things that I cant control.  I know it is a possibility he will catch something but we will cross that bridge when we get to it.  This is going to be so good for him and I just cant stop smiling when I think about him sitting in a classroom with a room full of friends learning how to read, do math, etc.  He loves learning and know he is just going to love it!

I didn't get any clinic pictures this time but here are some pictures from our first trip at the zoo since dx.  We went with all his cousins and he loved it!


Holly said...

So happy that things are going well! That is very exciting about Skyler starting kindergarten this year! We wish him (and you) all the best! And hope you find a great new home!

Anonymous said...

Hello Crystal, My friend’s son was just diagnosed with Leukemia AML M6 one month ago and that’s how I came across your blog while researching on this disease. Skyler is an inspiration to me and he is such a handsome boy. I know God loves him and will do some amazing works in his life. I will continue to pray for Skyler and ask God to give him strength and heal him completely. Bless your family!