Skyler did really well at clinic today.  All of his counts looked great including his bili.  A couple of the liver function numbers went up a little but it wasnt enough to be concerning.  So this meant that they were able to give both of the chemos, Vincristine and Methotrexate, together today.  They also upped the doses on both of them.  Skyler is officially back on the normal road map now.  The phase he is in is called Interim Maintenance.  If his counts are good and his liver function stays ok then they will be upping the dose of Methotrexate every ten days.  I really hope he does well in this phase and that his body tolerates it.  One of the side effects of the Methotrexate is Mucositis.  These are horrible mouth sores that can also go down your entire GI tract and out your rectum.  I pray that he doesnt get this especially now that he is starting to eat a little more.  He is still on feeds, but is off of them eight hours every day.  This weekend we are actually going to try having the feeds on only at night when he is sleeping.  They just want to see if it will make him eat more.  I hope it does because that would be so nice not having him hooked up to that pole most of the day.

On Monday Skyler will go in and get his PEG shot.  This is a shot of chemo into his thigh.  It is a VERY painful one so Im so sad that he has to do this on Valentines Day.  I just hope it doesnt make him miserable for the rest of the day because he really has been looking forward to this holiday especially because its our first one home in awhile.  The last four holidays were spent in the hospital.  At least we are able to go home afterwards for this one, and Im going to try my darnedest to make this one special for him.


Skyler has just been so fun to be around.  He has this light in his eyes that just shines through that makes me so happy.  When I get down I just have to take one look at him and he lifts me back up.  His little laugh is so contagious.  You cant help but smile and laugh when he does.  I am so grateful for him.  There arent words to express my love for this sweet little boy.  Im am blessed to be able to share my life with him.

This is one of the surprises he made for me.  How cute is he?  I love that his heart and exclamation mark are upside down.

Walking outside for the first time

SUPER SKYLER!!!!

The famous picture by the fish at the hospital

Playing his DS while getting chemo

His poison today was a fancy yellow color

Getting ready to go home finally.  I like to bundle him when we go out into the halls.  In my mind it keeps more germs off of him.  I know I know Im kinda weird like that

Mommy having to do the not so fun chore tonight of changing Skyler's dressing on his central line

He HATES this! 

Sky's favorite part...putting the band aid back on because it means we are done.  He says its his best part.

Stacking cups.  Doesnt he look so good doing that by himself?  He has become really steady with his walker and is even standing my himself sometimes.