Just a quick update, we are home!  It just got to the point where they werent doing anything I couldnt do at home.  However, since being home he hasnt done too well.  He will spike a fever almost every four hours now.  He also has been getting chills.  He still has his feeding tube in so Im am doing feeds at home for him.  Good thing too because he just isnt eating much still.  I have a feeling we will be back in the hospital soon.  I know there is something wrong with Skyler I just wish they could hurry and figure it out so we can treat it.
Forgive me for the lack of updates, we still dont have Internet in our house so its hard to be able to post alot.