His ANC has dropped so much because they upped his chemo last month and I guess it was too much for his little body to handle. I have been told it takes a couple months or so to find the right dose that will keep his counts in the range they want it. Every kid is different so it takes a little bit to find just the right dose. I'm actually grateful we went into clinic today. Not due to the fact that Skyler needed blood but it gave us a chance to talk to the child life specialist about him getting his port. She showed us an actual port that they will place and gave him a doll that had one in it and showed him how they access the line. He has been so worried about this and has wanted to talk about it several times a day because he is so scared, but after talking with Rochelle he felt much better about it. She even left us with all the supplies to take home so he can practice accessing his "cancer friend" all by himself. This is like the port that they are going to place.
This is Rochelle showing him the steps they take to access it.
As soon as we got home he drew a face on his little friend. He said he made it a grumpy face because getting a port accessed would make him grumpy too. He also drew a heart on him. So cute!
This is him accessing his friend all by himself. That's the alcohol he cleans him with first. He was actually really good at it. When he was all done he said "I could totally be a doctor"
This is the part where they poke him to access the line. Don't worry we took the actual need part out.
Putting the bandage on.
I let him hook up an old line of his and fill it with water so he could give him some chemo
This is such a refreshing site to me! That's another weird thing cancer does to you. A big bag of blood doesn't make you gag it brings a big smile to your face because you know its going to give your child his energy back and give him some color.