Along with stopping his micafungin I also made the decision to pull his dialysis catheter and place a port in his chest. A port is a central line that most kids with his diagnosis have. It is placed under the skin and into a vein that goes to Skyler's heart. The first line he had was a port but it got infected when this fungal infection started. Technically a port is less of an infection risk than his dialysis catheter because its on the inside of the body and is only accessed when he needs blood draws or chemo. But I still associate infection with ports because we obviously didn't have a good experience with the first one. However, since his treatment is so long a port makes sense because he wont have to do dressing changes every four days, I wont have to hep lock it everyday, and he can get wet. So baths and swimming will become part of his life again. Since I don't have to hook him up everyday, placing a port now just makes sense. There is no need for that big line hanging out of his chest if I don't have to use it everyday. I also have had this feeling lately that his line now needs to be pulled. I'm not sure if its because I don't want to have to change his dressing all the time if I don't have to or if its my gut telling me this is the right decision. All the docs at clinic agree that it is time, so we have an appointment with the surgeon on Tuesday and surgery on Wednesday. I chose to have the same surgeon who removed his spleen to do it because he knows Skyler really well and he also knows that he has had a line in essentially every possible part of his body. The appointment on Tuesday is to see if there is actually a place on his body to place a port due to the fact he has had so many lines. If he can find a spot then we are good to go for the next morning. Even though I feel that its time to do this I am scared to death. This means another surgery and a new line that I'm going to have to get used to along with Skyler. Its weird to say, but I'm going to miss his line he has now because I have used it so much that it has become become second nature for me. It will be weird to have to get to know the ins and outs of a new line. When they have to access the port they have to poke him and attach a line to it, when they are done they just take it out and send us home. Since I like to do all his blood draws and be the one to work with the line I want to be able to learn how to access him as well. It will be weird to have to stick a needle into my son but its just another thing in this cancer world that I will get used to. Skyler is pretty scared about this whole thing and not a fan of getting poked even though they will numb it first so please say some extra prayers for him and for this surgery to go well. He has been doing so good lately that the last thing I want to do is rock the boat and risk something bad happening again, but being able to stop the micafungin and be able to place a port is actually a good thing. It means he is getting better. He is finally entering into a place of this journey where things are finally starting to become how they should be. A "normal" cancer kid if there is such a thing.
Here he is getting the ever so fun vitals, height and weight done. He has grown so much this month. Everyone commented on how good he looked and how big he has gotten. No one here has seen him this chunky before.
And of course he has to have some snacks before getting chemo. I didn't get pictures of him getting it because I was so busy talking to the doctors. By the time I was done talking he was all ready to go. I love fast clinic visits like this.