Thursday, September 30, 2010

Today Skyler is going back on Chemo.  They had to stop his chemo when he got this infection because without any immune system he wouldn't be able to fight off this infection.  They gave him medicine to make his white count come back quicker. But now his white count is back and his numbers are high, so that makes the oncology docs think that he may be going down that road of his cancer coming back.  To stop that they have to start chemo again.  Its a really low dose, kind of like the dose they give in the "maintenance" phase.  So the plan is to keep the cancer from coming back but not give him the full dose that will wipe out his immune system completely again. Thats the "plan" but for some reason Skyler seems to have his own "plan" in mind.  Its funny because the docs and nurses keep saying that skyler is special and marches to the beat of his own drum.  One doc said that he definitely didnt read the manuel on how to get sick.  He has so many things going on with him that they never see, so they sum to it up to it just Skyler being Skyler. Im not sure how to take that, but I do know that he is the toughest kid I know and that he is a fighter!!

This is one of the signs they have to hang on his door so everyone knows he is getting Chemo.  They have to take alot of special procautions in handling how they do things with him and the things that touch him within 48 hours of giving it.


This is a picture of the dreaded Chemo.  We have a love hate relationship.  On one hand this is the medicine that killed all of his nasty cancer cells, but it also hit his body so hard that now he is in the ICU with five organs failing.



I call Skyler my Superhero.  He loves superheros and is definitely my superhero.  He may not be able to lift cars and fight bad guys in the sense you see on TV.  But he is fighting his own battle right now, fighting off all those "bad guys" that are invading his body and making him so sick.  So Beau my favorite nurse (the one you see in the pic above) told the child life specialists and they came back with these cute pictures and put them on the ceiling above his bed.  So when he does wake up this is what he will see.  I thought is was so cute, and it made me so happy they did that :)


7 comments:

N Gines said...

You can do it "Super Sky!" Stay strong and you're always in my thoughts.

JACK's house said...

That's so cute of them. Stay strong Skyler and Crystal. You are both AMAZING!

Anonymous said...

Love the stickers! What a little trooper! Hang in there!

Chelsea said...

He truley is a super hero! Chemo is amazing and brutal stuff! It makes me want to laugh and cry when they come in dressed in their blue protective gear to give Cami her chemo. Crystal..I must say, I think you are a super hero too. There aren't many moms who could go through all you are going through. You are the perfect Mommy for little Sky. Keep hangin in there! We all love you!!!

Lindsey Hill said...

Go skyler go!!!!!!! He is a super hero and so are you crys!!!! Love you guys tons and tons.

Amanda said...

Skyler is the only real life Super Hero I know! GO SKYLER! Crystal, you are amazing as well. You both are fighters, you amaze me. I look up to you more then you will ever know. Thank you for sharing your story with me. I love you.

Cami said...

Hello to both of you! I do not know you, but I am AMAZED, truly, by your story. Skyler, you are the strongest boy I have heard of. Crystal, you are the perfect mommy for Skyler. If only all moms could have the strength and courage that you have! My heart, thoughts and prayers are with you. You will fight through this....both of you as a team!