Wednesday, June 29, 2011

We are home!  Since every test came back negative our next step is the nuclear testing which we can do out patient.  Tomorrow morning we will head back up to radiology where they will draw some blood, alot of blood actually (40 mls) Then they will somehow (sorry Im not sure the correct terms for it) but they will attach some dye to his white cells.  We will wait a couple hours while they attach and then they will inject back in him the blood they took along with the new cells.  Then Friday afternoon we will go back in and scan him.  These white cells will go directly to any infection in his body and light up in the scan.  I really hope this can give us some insight in to what is going on.  Then depending on what it shows Skyler will start the new phase of chemo on Saturday night or Monday.  This is inpatient so we will back in ICS but at least we have this little break.  They wanted to start chemo tonight actually because it has almost been a month without it and that is dangerous, but Sky is supposed to be in a parade on Saturday so they were really great in working with us so Skyler could make it.  He is so excited to throw candy so Im very grateful they let us do this test outpatient and then start chemo right after.
Skyler is still having fevers but has been in great spirits today.  He actually talked and laughed with our nurse today.  This is huge!  Also one of our favorite PA's son came and gave Skyler an awesome dinosaur blanket today.  He actually was a cancer patient too and for a project for school he earned money to make this blanket, made it all by himself and came and gave it to Skyler.  He is the sweetest kid ever!  I was so touched by this.  This is Skyler's special blanket and he loves it.

7 comments:

Susi said...

Hurray for a great day :)

Erin said...

Yay!! Wonderful news that you are home, even if only for a short bit before the chemo admission. We are so happy to hear that Skyler had a good day yesterday. We will keep everything crossed that the nuclear test will show where this infection is, so little Skyler can get feeling better.

Tonya said...

So glad that you are able to go home. I'm sure Skyler is loving it. We will be thinking of you and hoping all will go well these next few days.

Jessie said...

What parade is he going to be in on Saturday? Post on facebook and let me know. I wish I could participate in the CureSearch walk on the 9th but my sister is getting married that day. I'll be thinking of you two!

ana said...

I think the test is called an Idium white blood cell scan, and it's supposed to be pretty effective in finding infection or inflamation inside the body. Let's hope that they can finally give you an answer so they can start making him feel better!!!

Skyler is always in my prayers and thoughts.

Ana
Montreal, Canada

Briana said...

Hooray! Thanks for posting this little bit of happiness. It helps us to see that our prayers are being answered and that he is feeling a little bit better. I hope this new test helps you find answers!

Karen said...

Thank God for the good news and Skyler's smile!