I wouldnt wish upon my worst enemy the things I saw done to my son. I have horrible flash backs and nightmares to this day. I have felt emotions that I never want to experience again in my lifetime.
Along with so much pain and heartache that this past year has brought, there has also been so much good as well as weird as that seems. I got to experience the amazing joy of seeing my son open his eyes again for the first time. I got to experience his first drink, the first time he talked and sat up and even walked again for the first time when these tasks once seemed impossible. I got to experience the selfless service of others. People I didnt even know helped carry me through days when I didnt know how I could go on. I learned just how lucky I am to have the best family in the world. My mom spent six weeks sleeping in a rocking chair without leaving my side. My dad came up everyday. And my brothers and sisters and extended family were there whenever I needed them. I have learned things about myself that I didnt know before. I learned that I am stronger than I thought I was and learned what kind of person I want to be from being on the receiving end of such wonderful acts of kindness. I have learned to never take the little things for granted because you never know when those might be taken away from you.
I still cant believe it has been one year. It seems like a lifetime ago that my world was turned upside down but then again it went by so fast. Thank you so much for all the love and support that you have shown me and Skyler. I definitely couldnt have survived this last year without it. Thank you for taking the time to read about my son and being apart of this cancer journey with us.
"Life isnt about weathering the storm, its about learning to dance in the rain."
This is Skyler a week or two after diagnosis. He went into renal failure so they placed the dialysis catheter you see sticking out of his neck.
This is after they found the fungal infection. They had to remove his central line and dialysis catheter that were infected by the fungus. The bruising on his neck is from the line removal. He also got severe burns from the EKG patches. He is also starting to swell from his kidneys not working
This is after they placed another dialysis catheter. He gained over 10 pounds in one week from retaining so much fluid. Those red lines are his blood going out of his body, getting "cleaned" and going back in. I about passed out the first time I saw the blood start coming out and going through the machine.
The fungal infection spread to his lungs along with fluid making it difficult for him to breath. The placed him on the bi-pap for support.
It got to the point where he couldnt breath on his own so they had to intubate him so a machine could breathe for him. They also had to place a new dialysis catheter. He has had five different dialysis catheters
He is so swollen and bruised from being in renal failure and having low platelets. He also started turning yellow from his liver shutting down. He has had a total of 6 chest tubes also to drain fluid from his lungs
Those are pressure sores on his face that he received from the different bi-pap masks before intubation. He also had a very bad pressure sore on his bum from not being turned when he was so swollen.
These are all the machines that kept Skyler alive for three months. It was a very noisy room
Skyler was so fragile that it took alot of people to lift and move him. He was so fragile that even I couldnt hold him. It was so hard not being able to hold my own son for months. He was in isolation alot of the time due to all his infections, that is why they are wearing those yellow gowns
This was right before they took hom down to remove his spleen. And yet again another dialysis catheter
Skyler spent many holidays in the hospital
I love you Skyler!