Today we went up to clinic to see if Skyler made counts to start a new round of HD MTX tomorrow. He barely made it so they decided to just admit him tonight instead of just having to come back in the morning. Since we have been here he hasnt been feeling well at all. He is having really bad headaches and earaches, he has also been throwing up alot and is still having fevers. Right now he is on morphine for his head, zofran for being so nauseous, rocephin for fevers, fluids, feeds, and a 23 hour chemo drip. His IV pole hasnt been this full for awhile and we have been keeping his nurse really busy tonight. So far tonight has been more eventful than our last two stays combined. Hopefully after getting some rest tonight he will feel better in the morning. We have his LP and ABR scheduled for Thursday so Im anxious to hear what the audiologist has to say about his hearing. Lately he has been telling me that his voice sounds different to him, alot softer than it normally does so hopefully we can get this figured out soon.
This look says it all....
He is not a fan of people poking and prodding him tonight while he doesnt feel good.
Before starting the chemo bolus and drip of methotrexate they give him another chemo called vincristine
When he spikes a fever they have to draw cultures to see if anything is growing in his line. He hates this part because it is done sterile so it takes longer.
Here is a pic of his IV pole. Too many pumps tonight.
3 comments:
Aw, poor Skyler. I hope he feels better quickly and gets through this cycle as easily as the last one.
Erin
The look on his face is so submissive. He is sure a sweet little boy--I hope that things turn around fast and he feels better very soon.
Haven't looked at your blog for a couple of days....I just don't know what to say except that my heart goes out to you Crystal. I am so sad for all that you are having to watch him go through. I just admire your courage and strength so much. I already read your next post and I'm so glad that he had a better day! He deserves to have some peace. What a miracle he is and whenever I feel like complaining about anything I just need to remember Skyler and you as his mom because you are both AMAZING! May God and angels keep sustaining you both until this awful trial is over....
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