I was so proud of him because he did great in the booth this time. He sat through the whole thing and was trying so hard to hear the sounds.
That's the little machine that programs the "hearing eggs". Before Skyler got them he obviously couldn't hear well so he thought we were saying hearing eggs, he has called them that ever since.
Today Skyler had another first. His first bath in over a year! Of course I still bathe him, but I give him sponge baths because he cant get his line wet. This is definitely one of the downfalls of still having his dialysis catheter still in. They do make safe guard things that go over the line so kids can still get in the bath but its sticky and it pulls Skyler's central dressing off so it just didn't work for us. I still wanted him to be able to just sit in a warm bath a play so I came up with what I think was a brilliant plan....saran wrap! I just wrapped him up and put him in the water. It worked great and he was able to finally have a bath. He played in the water forever and I kept having to refill the bath with warm water. His hands and feet actually pruned! Haha I never thought I would be so excited about pruned hands. Its amazing the things I find so wonderful now. You just never know what you really have until its gone.
Such a cutie! Don't worry he can still breathe, it looks tighter than it actually is.
9 comments:
He looks so good! I don't know how this would work for you guys, but when my sister had surgery they told her to use press and seal wrap around the incision. I wonder if that would work with him? If not, it looks like the saran wrap worked great! And I'm glad his hearing eggs are working out for him. It took us a few tune ups before we found just the right settings for Jayden, so hang in there!
Let Me just say your family is so nice an loving I'm so happy I got to meet Skyler, you have no idea how happy my whole day was after that! I'm happy my kids got to meet him also we talked about him for about the whole night ;0) he inspires me an my family so much N for you what a Wonderful Beautiful mom you are...Bev
I love that he calls them "hearing eggs". So appropriate! And I see somebody already mentioned it, but try Press and Seal. Our home nurse told us about that when Annabelle first had her line put in and that's all we use at home now. Much easier to get off than AquaGuard and doesn't stick to the dressing, but makes a great seal and keeps water out! Here's to many more real baths, Skyler!
Wow! He looks so great, Crystal! I'm just so freaking happy for you two!
I have been so amazed at his journey and the strength both of you have shown! I saw it above, but Press N' Seal is amazing! I used it a ton with my kids IV's, ports, etc. It really does create a seal and then is easy on the skin when it comes off. I'd make a square over the area you are going to cover and then use another piece(s) to go around again. Please know that many people are thinking of & praying for both of you!
He looks so happy to be in the bath! I see the others have already mentioned Press 'N Seal. We have even used it to keep Nolan's emla cream in place over his port.
It's great to hear that there is such improvement with Skyler's hearing with the hearing aids.
Erin
He is just darling Crystal! Another thing people take for granted (just jumping in the bath or shower without a second thought). I can't say it enough and NEVER will stop saying this...Skyler is the MOST amazing little boys and such a pillar of strength! I admire you both sooooo darn much!
*suzie
hearing eggs... made me smile!
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