Tuesday, May 22, 2012

Today was another clinic visit, and to Skyler's delight he got to have a back poke.  Crazy kid, I cant believe how excited he gets for his LP's now.  He just has so much fun playing with Lindsey (the child life specialist) and the helicopter in the RTU.  I am just an onlooker now in RTU while Skyler skips in the room, hops on the bed, and plays with his helicopter while being put out with the "sleepy medicine."  He is such a different kid now and its crazy to think that he once had to have me hold him tight and bury his head on my shoulder while falling asleep so he wouldn't have to look at anyone.  I also remember reading other cancer cuties blogs and their mothers telling how their child looked forward to going to clinic.  I never in a million years thought Skyler and I would be the same way, but it happened.  Skyler actually looks forward to it now.  We are so blessed that things are going so well!  Sometimes its still hard to believe that things are going well for us and I'm just waiting for the other foot to drop, but then I just have remind myself to enjoy the moment.  I don't know what the future holds for Skyler, all I can do is be grateful for where we are at now and live in the moment.

All of Skyler's labs looked great today except for his ANC which was way too high at 6.9.  They upped his oral dose of methotrexate to see if we can get it to come down into the right range.  It should be anywhere from .8 to 1.5.  Hopefully next month his ANC will drop, if not then they will up the dose of his 6MP as well.

Also, I have to say a big thank you to Tim Nestoryack and his daughter for running the Ogden marathon while wearing Skyler's shirts.  Tim even gave Skyler his medal he got!  This made Skyler one happy little boy.  He is so proud of that medal and is wearing it all over the place! 

This picture brings tears to my eyes.  I am so very grateful for the love and support Skyler has received.  This journey would have been so much harder without such wonderful and good people to help us through.

          Thank you Tim for bringing this smile to Skyler's face!!

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