Friday, December 3, 2010

This last week has been quite the roller coaster.  Its crazy how one day I can be so down and so heartbroken and then the next I couldnt be happier.  Today Skyler was taken off the ventilator!!  He is back on the bi-pap mask, but they were able to take that awful tube out of his throat.  They said that they were amazed at how well he is doing without it.  They also did an hour trial off the bi-pap and onto a nasal cannula to see how he tolerates it.  Again, he amazed everyone and did great.  He even smiled and laughed!!!  And then he just wanted to give me hugs and more hugs.  I couldnt stop smiling.  I cant stop smiling right now as I write this.  To go from one day of seeing Sky SO sick and sad, to the next day smiling and laughing is awesome to say the least.  Pure joy and happiness is what comes to my mind.  Oh how I missed that little laugh and those sweet hugs.  I just pray that I will continue to be able to experience these happy moments.  These are the little moments that I can pretend that all the bad is gone and just smile and laugh and love him.  I love being his mother, I am truly blessed.

                               I just wanted to post this picture because it brings a smile to my face
                                        It shows a little of that personality that I love so much

                                  

Also, I want to say a BIG thank you to those amazing people who put together and dropped off an awesome basket full of goodies for me and Sky.  You made my day, and Skyler's eyes got really big and happy looking through everything.  THANK YOU!!!!!!!!

11 comments:

Piano Mom said...

I LOVE the little good things that you are seeing with Skyler. Way to go Skyler on getting off the ventilator. I am so happy to hear this good news!

The picture is priceless. Thank you so much for sharing it.

Anonymous said...

Yay!! I've been checking your blog all day today and I am sooo excited to read your post! It's amazing how strong kids can be. I'm so glad you got to see those smiles and hear him laugh...I hope he continues to pick up day by day! Have a wonderful weekend and know that we're all here praying hard for you guys!!!! Yay!!!!

-Krin (and Mathias)

Susi said...

so glad you had a great day... hope things keep looking up!!!! (I'm a friend of Kristin Torres) We'll pray for Skyler!

Anonymous said...

So happy for you and Skyler! Enjoy every baby step he takes towards getting better. The picture says it all!
--Marie & Rachel

Briana said...

Hooray! I'm glad to hear good news! And I'm so happy you're getting to enjoy some happy moments with him. Yay!

Amanda said...

That boy is one serious fighter! I can't believe he was laughing today. How amazing! He is trying so hard to get better. I am glad to hear you both had a good day. :)

Katrina Mortensen said...

I love Skylers smile his dimples are so cute!! I'm so glad to hear that he is doing better today. He really is a fighter way to go Skyler!! He really is an amazing little guy. Will contiue to pray for him :)

Amy said...

I am sooooooooo happy to hear he was able to laugh!! that's fantastic:):) Keep up the fight Skyler!!

Whidbey Woman said...

:) That's great that Skyler's off the vent!!! Thank you, Jesus.

Kristin said...

Wonderful news! Yeah Skyler!!! And so glad you have had a day full of joy. You deserve it.

lindsay Roscoe said...

I love this post. Keep hanging onto that hope. AMAZING!! Prayers always!