This morning Skyler went in for another CT of his lungs to look at the nodules. The scan showed they are stable and unchanged. I was hoping and praying that they would have shrunk because his fevers have gone away, but at least they havent gotten any bigger and for that I am very grateful. We go back in on Tuesday for a lumbar puncture where they will take out spinal fluid and replace it with chemo. Then we will head back up to clinic where we will start the second half of this phase. The chemo he will be getting that day is Ara-C and Cytoxin. Then for the next three days I will be giving the chemo to him at home. Just another IV med I will be adding to the list, the only difference is I will be wearing the lovely chemo attire and injecting poison into my son. Im getting to where I could do this in my sleep! Thats ok I actually enjoy being able to do the things he needs at home. Never in a million years did I think I would be where Im at now. Accessing Skyler's line to give multiple antibiotics and chemo just come second nature now. Sometimes I forget what it was like before cancer. What did we do? How nice would it be to have the biggest worry of my day be deciding what to do for dinner. Its crazy how fast life can change. Yesterday we had lunch on a blanket in the front yard then he played with a couple toys outside for a little bit (not too long because he tires easily) but just doing those things was a BIG deal and a huge accomplishment. Im also getting so used to seeing him without hair that when it did grow back it was weird for me. Today I wanted to go get a registration form to fill out for him to start kindergarten and found out that everyone had gone home at 3:00. My first thought was "thats weird shouldnt they stay open later for the kids that have to get chemo and CT's that day?" Silly thought but thats really what went through my head. Oh the joys of childhood cancer.
Here are some cute pictures from our day yesterday.