Wednesday, August 3, 2011

Look what Skyler got today.....


......a new feeding tube!  I honestly never thought I would be so happy for Sky to get one.  Its actually more of a feeling of relief instead of a happy feeling.  It has been so hard lately to get him to eat anything because everything tastes so yucky to him from the chemo and he is losing too much weight.  Everytime I see him without his clothes on its like a slap in the face, he is just stick and bones and I just couldnt wait until next week for his other procedures to get one placed.  Instead of having them place a NG I took him to radiology to place a NJ which goes into his intestines instead of his stomach.  He usually throws the NG up within a couple of days and I want this one to stay in for awhile.  He was so scared but did great considering that it took them forever to get it into the right spot.  His dudeum (dont know if I spelled that right) is shaped like a cork screw so the doc had to keep pulling it back in and out of his nose several times before he got it in.  Skyler kept screaming "why in the world do you keep pulling it out?!"  He was convinced he was doing it wrong because it normally doesnt take that long so he kept telling (well yelling) at the guy to do it right.  I have to admit it was a little funny.  He has done this so long that he knows when things arent right.  Once we left the hospital he perked right back up and even said he was glad it was in.  I think I will sleep alittle easier tonight knowing he is getting the nutrition he needs.

5 comments:

Josie said...

We saw you outside today and I thought about bringing my little guy, Alex, to meet Skyler. I thought I would run it by you first. I know he can't be around too many people. Will you email me and let me know what you think. We would love to bring him something he would enjoy too. What kinds of things does he like? You are so strong, I have been praying for you guys :) In case you forgot, I am the one who came over with the baby the other day! My email is josiehowens@yahoo.com. Please let me know.

Susi said...

Awe....Skyler. I love that he was yelling at the doc! haha. Good for him...that boy has guts!!! Hope it helps you and him feel better. Still praying.

Anonymous said...

NOTHING BETTER THAN SEEING HIS SMILE...

Crystal,, your a wonderful mommy...

god bless..

zachs mom

Brandi said...

He's so dang cute! And so dang brave!

Connie said...

I laughed when I read the part about him yelling at the doctor. What a smart boy! And a very handsome one too!