Saturday, October 15, 2011

I just want to say how amazing, strong, and brave these little cancer heros are.  I saw a tiny glimpse of what these kids go through everyday and its truly awful.  Long story short I ended up in the ER with "stroke like symptoms"   and had a CT scan and MRI of my brain, an EKG and some blood work done.  I was only there for five hours because everything checked out ok but those five hours were torture.  That MRI machine is a scary thing even for an adult and these kids do that all the time.  I am so claustrophobic and was starting to freak out a little but I quickly thought of Skyler and all that he has to do and all those other little kiddos that have to have their heads bolted, yes I said bolted, down to a table for radiation and told myself this was nothing compared to what they have to go through.  The whole ordeal was something I hopefully dont ever have to do again but these kids dont have a choice.  Their everyday lives are filled with hospitals, doctors, pokes, scans, pain, fear, and poison constantly flowing through their veins.  As an adult I knew what they were doing to me and what it was for but alot of these kids are too little to even understand why they feel so miserable all the time and why they are constantly having to do things that are scary.  I respect and look up to these kids so much.  They truly are superheros.  I know I could not do what they have to do on a daily basis and still have a smile on my face.  They are stronger and braver than I will ever be.

Instead of capes, these little superheros have all sort of tubes and lines attached to them.


 Instead of masks covering their eyes, these superheros wear green masks.


Instead of a batmobile they ride around in wheelchairs, on IV poles and hospital beds


Instead of batcaves they live in hospital rooms


 Instead of fighting a villain they can see, they fight an evil villain that is lurking in their bodies


 Unlike superman or batman these superheros dont come out of the fight unscathed.  They come out with plenty of battle wounds


 Instead of using big muscles and weapons to fight, these kids use their courage, inner strength and smiles to win their battle.


  Whenever I hear the word superhero, this doesnt come to mind.....


                                                                        This does....


Skyler doesnt fight alone.  He fights along side thousands of other cancer heros.


13 comments:

Rachel @ TalesOfGrace said...

Awesome post! Skyler is an amazing little boy and I'm so happy he's doing well.

Misty Jo said...

I'm so glad that you are ok! I'm sure that time at the ER was extremely scary. Your son is so amazing! I'm so glad that he is doing well:)

Anonymous said...

Beautiful post about our super hero's. I am glad that you are ok.

Chelsie said...

Oh no Crystal! I'm so glad things checked out alright, and I hope you don't have to deal with anything like it again.

You're right, these kids are amazing. And Sky is probably the most amazing kid I've seen fight this battle. I'm so glad he's doing so well now and getting strong every day!

Tara Mogle said...

you said it perfectly! these cancer cuties are definitely superheros. you keep doing what you are doing because you are doing a great job! So sorry YOU ended up in the ER....but so happy everything checked out ok for you.

suzie said...

HOLY MAAAAAJOR TEARS CRYSTAL!!!! This post is soooooooooo perfectly said, you nailed it on the head! Everyone needs to read this post....so true it is...so true so true so true so true!!!! WOW!!!


Thank you for that! So go
od to see Skyler smile and his darling eyes "light" up again in recent pictures you've posted.

He continues to be in our prayers.
*suzie

Erin said...

I'm glad you're okay, Crystal. You are SO right about the superheroes that live among us. I never knew a real hero, until my son became one.

Erin

Briana said...

so scary, crystal! i hope you're feeling better now and that there is no more of that.

i loved the superhero comparisons. beautifully said.

Tonya said...

That was beautifully said! Absolutely breathtaking. They certainly are superheroes, and glad to hear all is o.k. with you. Thanks for the wonderful reminder of the real superheroes.

Jessica Cook said...

The pictures make me want to cry for everything thiat he's been through. What a strong superhero. You and Supersky are an inspiration and have been a joy to follow even through all the pain. I hope to never experience first hand the pain you've gone through. I appreciate your blog and your willingness to share everything you've gone through. Wishing you all the best and many happy treatment free years!

Sonja said...

I'm glad you are okay and I loved the post--though not the cancer or what these kids have to suffer. He really is a super hero, and so are you!

Anna said...

I'm glad that you are okay. And this post brought me tears. :) You're so right. Those little ones are true heroes. I've been learning so much from you and Skyler and those heroes. Hope you feel better and thanks for your posts. They have strengthened me so much in so many ways, much more than you can imagine. -Anna McGrew (Jason's mom)

susi and adam said...

glad you are ok!!!!