Tuesday, January 31, 2012
I cannot believe how fast a month goes by lately. Today we headed back up to clinic for more chemo and an LP. I was really looking forward to it actually because I was so curious what his counts were. I have basically been letting him be just a normal kid going places and playing with friends so I was hoping his counts weren't bottomed out or something. To my surprise they came back too high. His ANC was 4.0 way higher than it should be, so they raised his oral chemo dosage back up to 100%. All of his other numbers were just where they should be though so that's great. They even had his Vincristine ready to push before we went down to RTU so that was great too. I love not having to drag a sleepy grumpy child back up to clinic after an LP just for a little push of Vinc.
While we were waiting for our turn in RTU, our favorite child life specialist Lindsay came to play with Skyler and keep him entertained while we waited to go back. Lindsay is still the only person up at the hospital that Skyler will talk to and interact with. All the nurses and doctors try so hard to get Skyler to talk to or even just smile and them but he wont budge so its wonderful to see him talking and having fun with someone else besides me while we are there. We got lucky with a great anesthesiologist too who was really great with Skyler. When he came back to get us he told Lindsay she could come back too and Skyler actually let go of my hand and ran back to the room. Yup I said ran! He normally has me carry him back there and buries his head on my shoulder because he gets really nervous and scared right before. Today was so different though, I was amazed watching him. It was like I was looking at a different kid. He also just got up on the table and started playing with Lindsay and the nurse and and didn't even really pay attention to me. I have always held him in my arms while he falls asleep but today he just sat there and played up until the moment he fell asleep. It was great and I took the opportunity to record him. Here is just a little part of that video when he falls asleep. I just want everyone to see how fast it is and how it is such a different atmosphere than the O.R.