On Tuesday Skyler had another clinic appointment for Vinc and an LP. Everything went really well. His ANC has come down and is finally in the range it is supposed to be but his blood and platelets counts dropped down too low, just as I had suspected. He has been really pale and bruising alot lately so I wouldn't have been surprised if he needed a transfusion, but luckily both levels were barely above transfusion levels so we were able to make it home without any. We had to stop all oral chemo the rest of this week though because of the low counts to let his body recover. I hate having to stop his oral chemo because he needs it to keep the cancer away, but a little part of me was happy because I thought it would give him a week of feeling great. I was so wrong. Last night he spiked a fever and he has been having really bad body aches. His head is really hurting as well as his knees and back. He could hardly walk last night and this morning because he had so much pain in his knees. Even when he is just sitting down his knees are hurting, its so weird. Because of the fevers we went back in to clinic for IV antibiotics and cultures. His ANC was still ok, so thankfully we were able to come home afterward instead of being admitted.
Skyler is still feeling really crummy tonight and keeps saying that he is just so sick. He is now saying his throat hurts and feels nauseous as well. I haven't seen him feel this miserable for awhile and it breaks my heart. It brings back a flood of emotions I was starting to get used to not having. He has been doing so extremely well lately so I have been able to relax and feel really good about things, but seeing him like this again just brings back all those awful panicky feelings. Hopefully he can get the rest his body needs tonight so he can start feeling better soon.