Wednesday, January 19, 2011

A LOOK AT OUR DAY


Skyler got invited to a pirate birthday party for his friend, but since he cant be around other kids right now his mom brought over all the stuff that they were going to do at the party.  He was so excited and said "Oh that was so nice of them!"  He got to decorate his own pirate hat and it turned out pretty sweet.

Here he is in his pirate hat working on standing with uncle Ty Ty


This is his "scary" pirate face


 Trying to stab mommy with his sword.  He thought this was really funny!


Getting chemo with a smile on his face.  His belly is still pretty big because his liver is still huge.


He likes to know everything that Im doing and why Im doing it.


My dad brought home a walker for Sky today and look at him...he's standing!!!! Well his bum is still leaning against the couch, but this is HUGE for him.  He has been so afraid to even try to stand so seeing him do this is amazing.  Im sure it helped that my dad was there too.  He absolutely loves my dad, they are best buddies and he does so well when he is around.  Thanks dad and way to go Skyler!!

14 comments:

lea said...

WOW Crystal, he looks SO GOOD! I cant believe it. I think being home must be the best medicine. Tell him way to go on standing....he'll be running before you know it! Im so happy for you guys I could cry...it really seems like things are looking up for you and hes making good progress. YAY!
I hope you are getting some sleep and feeling well yourself...its hard on your body to be the sole caregiver all the time, even though you wouldnt have it any other way. Hope you are feeling well!

Jen Beckstrand said...

Ah!!! I can't wait to see this standing happy little boy! We miss you guys! Oh and thanks for the super sweet watch and belt! Your the best!

Misty Jo said...

He looks great!!! I'm so glad he is doing so well:)

Brady said...

He looks so happy standing there with your dad. What a strong little fella.

lindsay Roscoe said...

He is so cute! It is so fun to see him smiling and making pirate faces at you. Keep being so cool Skyler!!

Anonymous said...

He looks so much better! That smile on his face is priceless! So glad to see that he is making improvements every day! Yay!

hembrookadelman said...

Way to go Skyler!! That is so wonderful to see him trying to stand, and loving his smile. Way to go Mom too. He is truly blessed to have you!!

Erin said...

So thoughtful of Skyler's friend to bring the birthday goodies over for him.

And WOW, Skyler looks fantastic! It's awesome to see him standing (and so smiley)!

Nick & Bon said...

I've been following your blog from the beginning and just wanted to say how AMAZING Skyler looks! He is one tough little boy (with one great Mom)!

Miracles Happen said...

My son has cerebral palsy and he is 5. But I have a pediatric walker that is sitting in my garage. It has been there for about 2 years. If you would like to borrow it I would be more than happy to loan it to you. It is a reverse kaye walker. It has rolling wheels that might be easier for him to use because it rolls. My email is nancy.brown05@gmail.com I would be happy to loan it out

Cami said...

So happy that you both are home!!!It looks as if he is getting better and better every day! Such a long way from the PICU! You deserve to be home! Skyler amazes me!

Kristin said...

Crystal, Skyler looks absolutely wonderful. I can't get over his smile. It is one of the best smiles I have ever seen. He is so proud of himself standing there next to your dad. I pray every night that things will continue to improve for Skyler.

Chelsea said...

I LOVE the "scary" pirate face... SO cute!!! He is just looking so great! I love to see him standing. He has come so so far. What a strong lil guy. Love you both! XOXOXO

cjmom said...

Yea for the pirate mom!