Saturday, January 8, 2011
Right after we got home and got Skyler settled, our home health nurse came and reality set it. She brought with her about a million and a half boxes of supplies. We jumped right in and she taught me how to use everything. This is how my day and night went:
Administering Chemo, hanging his IV anti fungal and giving it through his central line, starting his feeds on his new pump, getting his new wound vac and having to change the dressing at two in the morning, giving all his MANY medications through his feeding tube, cleaning up throw up and changing all bedding in the middle of the night, turning him on his sides every two hours, racing to catch the barf bucket multiple times, changing 4 huge diarrheas along with changing all bedding again, and trying to keep him entertained and happy. I have been constantly on the go. My body and brain hurt like crazy, but its all completely 100 % worth it!!!!
SO ready and excited to go home