Saturday, January 29, 2011

Yesterday we had a couple of firsts for Skyler.  His platelets went up by themselves for the first time!  On Monday they were 227, yesterday they were 267.  I was definitely prepared for him to get a transfusion so seeing that they had gone up by themselves was shocking.  Im so happy right now.  I honestly didnt see this coming, I for sure thought he would be getting platelets every other day for a long time.  Another first for Skyler yesterday was that he walked!  He walked all the way across the room and back with his walker.  I almost started crying I was so happy.  I didnt want him to think I was sad that he was walking though so I held back the tears.  I wish you all could have seen the look on his face.  He was so determined and so proud of himself.  You could tell that it was hurting his little legs but he was determined to walk so he did.  Wow, yesterday was a good day.  I am one very proud mamma right now.  He has just come so far, its truly a miracle.
One Tuesday he is scheduled for a lumbar puncture to put chemo into his spine, and also a bone marrow aspirate to check for cancer cells in his marrow.  His blood count was a little on the low side yesterday so they will also be giving him a blood transfusion.  This will be the first time that he gets to go home right after his LP so it will be interesting to see how it goes.  Also his bili has stayed the same at .7 so all is well with this new chemo for now.  They will check again on Tuesday to see if it is still good and if so then they will give him another dose and also maybe add another one.  Tuesday will be a big and exhausting day.


Here is a picture of my must haves since being home.  I would go crazy without them.  Clorox wipes, a diet  coke, and a thermometer



And here is a picture of Skyler's must haves.  A game, movie, DS, and his barf bucket.


Also, look at all that hair coming in!  It started coming in last week and it has been growing like crazy

9 comments:

Mindy said...

That is so awesome Crystal!!! I'm so happy to hear all the improvements and that things are starting to look up! It is definitely a miracle, yay!!!! :)

nsudburyfam said...

Such great news!! We'll be thinking of you guys on Tuesday.

Ruth said...

yay!! so happy to hear this good news... been praying much for Sky!!

Lindsey Hill said...

way to go skyler!!! Before you know he will be running across the room!!!!!!

Marie Steele said...

You both look great, Crystal! So glad to hear that he's starting to walk again. Maybe we'll see you at clinic on Tuesday. Hope all continues to go well!

Cristina said...

Simply amazing, both of you! So happy to hear little Skyler walked and he's doing so well. We're going to keep those prayers going. May all His precious blessings be yours!

Mummers said...

So happy for both of you.

Chelsea said...

I'm so glad his numbers are looking so GREAT!! It is wonderful to hear he walked, what an amazing boy he is. Love you both! XOXOX

PS- I can totally relate to your "must haves" :)

Amy said...

So good to hear his platelets are good!:)
My son's hair fell out and came back a lot during his 1st year. It did not grow back all the way until we were in maitenance. It makes us so happy to hear your Skyler doing so well! He really is a walking miracle and one very special little boy:)