Yesterday we had a couple of firsts for Skyler. His platelets went up by themselves for the first time! On Monday they were 227, yesterday they were 267. I was definitely prepared for him to get a transfusion so seeing that they had gone up by themselves was shocking. Im so happy right now. I honestly didnt see this coming, I for sure thought he would be getting platelets every other day for a long time. Another first for Skyler yesterday was that he walked! He walked all the way across the room and back with his walker. I almost started crying I was so happy. I didnt want him to think I was sad that he was walking though so I held back the tears. I wish you all could have seen the look on his face. He was so determined and so proud of himself. You could tell that it was hurting his little legs but he was determined to walk so he did. Wow, yesterday was a good day. I am one very proud mamma right now. He has just come so far, its truly a miracle.
One Tuesday he is scheduled for a lumbar puncture to put chemo into his spine, and also a bone marrow aspirate to check for cancer cells in his marrow. His blood count was a little on the low side yesterday so they will also be giving him a blood transfusion. This will be the first time that he gets to go home right after his LP so it will be interesting to see how it goes. Also his bili has stayed the same at .7 so all is well with this new chemo for now. They will check again on Tuesday to see if it is still good and if so then they will give him another dose and also maybe add another one. Tuesday will be a big and exhausting day.
Here is a picture of my must haves since being home. I would go crazy without them. Clorox wipes, a diet coke, and a thermometer