This morning Skyler was scheduled for a lumbar puncture to put chemo in his spine and also a bone marrow aspirate. I told him that he was going to get the sleepy medicine again and he started crying. This was kinda weird because back when he was so sick he would beg for the sleepy medicine because he didnt want to feel the ouchies, so this was the first time he was really scared for it. However, he was excited for the wheelchair ride down there because we actually got to leave the unit. He was so excited and smiling the whole time. He was a little scared when we got into the room and he saw the bed that he had to lay on, but I put him on my lap when they gave him the sleepy medicine and he was out before he knew it. The procedure was really fast and when the came back to get me he was already awake. He woke up so happy and looked up to me smiling and said "That wasnt so bad mom, this is my best part" It was so cute. The cuteness ended though when we got back up to the room. The effects of the anesthesia kicked in and he turned into a crazy person. He was screaming at the top of his lungs and hitting and kicking me. It was so weird, I have never seen him like that and he has never responded that way to the anesthesia before. The nurse said it was pretty normal though. He took a couple of naps and when he woke up he was great. More than great actually, he was so cute and so funny, he was totally back to his normal self. He wanted to get in his jammies and sit on his little chair and show us cool tricks with his legs. I was so amazed. I havent seen him move like that since he got diagnosed. We have had such a wonderful night. Right now we are having a movie night and he is loving watching movies with mommy. I love this!! I love him!!
It seems we are getting closer and closer to going home. If things keep going good like this we may be able to go home by the end of the week. Holy cow I cant believe that we might really be getting out of here! It will be weird to be back in a house with no staff though. But it will be good weird and Im really excited about it. It is going to be so good for Skyler's mental state too. I cant wait to see his face when we go outside for the first time and he gets to see our new place and grandma and grandpa's. I just want him to be happy and I know being home will make him happy.
They have been teaching me how to take care of all his needs at home. Today I gave him all of his meds through his feeding tube, changed his central dressing, changed the claves on his catheter and put heparin in both lumens. Its kinda scary stuff because if I mess up it could make Skyler really sick but I love learning how to do all these things. Im kinda excited to be able to to take care of Skyler all by myself at home. Ill actually feel like a real mom again.
Here is the dummy I practiced changing the central dressing on before I changed Skyler's. His is actually alot different than this one but it was good to practice doing it sterile on a fake person before doing it on Sky.
Doesnt he look so good?
On a side note: I want to keep Skyler as healthy as possible so Im not allowing any visitors for awhile. Thank you so much for keeping Skyler in your prayers, I am so grateful to all of you!