Friday, March 11, 2011

Last night I went to dinner with a group of amazing women.  We all have one thing in common: our child has cancer.  Some of these women I just met tonight, others I have just talked to on the Internet, and others I have met in person but I have a strong bond with each and everyone of them.  Its so nice and such a comfort to be able to sit down and talk with someone who just "get it" and they can understand my crazy cancer mom brain.

I belong to a special group of women
My friends and I have an amazing bond.
We never wanted to be in this group,
Yet we are in, for life.
Maybe we have met, maybe we haven’t,
Yet our love for each other is boundless.
We know the pain the other one feels,
And we share our victories small or huge.
Words like chemo, IV, Zofran , bald heads
Are always parts of our conversations,
As well as roidrage, tears, and meltdowns…
We always know where the closest puke bucket is ,
We can hold it in one hand and if necessary,
Swallow the sandwich the other hand was holding.
We can drive to the hospital ,
Park in the dark parking garage
Make our way thru the halls of the hospital
And to the appropriate floor,
Settle in a room, turn the TV on,
Give instructions to the head nurse,
Silence loud beeping IV pumps,
Direct a wagon AND an IV pole
To the playroom without hitting anything
Make our way back to the correct room
And all this, mind you, With our eyes closed at any given time.
We know how to draw blood from lines
Sticking out of little kids chests.
We can hold them down with one hand ,
While a nasogastric tube is inserted in their little nose,
And be on the phone with their dads at the same time.
We can live for days on hospital food,
And on maybe only one meal a day .
We know the names of up to 20 different drugs ,
Their purpose, dosage and time to be taken.
We are always on call, 24 hours a day ,
Seven days a week.
We are used to not always looking our best,
Hard to do with only a few hours of sleep . M
ake up , hair styling, skirts are words of the past .
We have become addicted to texting ,
hospital, clinic, home, wherever…
We talk sometimes at all hours of the night ,
We know we can count on someone to be up.
Then for one of us , the world stops .
She has to walk away, broken.
This job is over .
The job is over, but the fight is on.
Remember , I said we were in this forever.
We are friends, sisters, temporary nurses,
We are each others rock, each others punching bag,
We listen , we vent , we cry , we laugh together .
We share our lives and our deaths
We share our pain and our victories.
We are strong, but not by choice ,
Sometimes we win , sometimes we lose,
But never are we defeated .
We are not nurses
We are not doctors,
We are cancer moms…
(I copied this from another cancer moms page.  Thanks Chelsea)


Amanda said...

Love you all. You're all beautiful.

Pianomusic821 - Kandice said...

Crystal, I found Skyler's Blog through Cami's blog through which I heard of cami from one of my friends. I had a friend pass away year ago from a different form of leukemia, but I just wanted to say that these little cancer kiddo's are my hero's they truely fight for everything they have, and stay so strong through it all eventhough they may be scared of some of the things they go through, they still stay strong. skyler is so cute, and I have loved following his story. his story, like cami's has touched my life. I wish you guys continued success in his cancer treatments....

lindsay Roscoe said...

I am glad you have each other. They're are way to many of you moms and families suffereing this cancer crap. I hope there is a HUGE turn out for the walk on the 9th of July. We support all of you!!