Clinic went well too, as far as clinic visits go. We had one of the first appointments of the day so there werent alot of people around, which was really nice. I told the doctor about the weakness in his legs and she said it was a side effect from the Vincristine. She cut the dose in half this week because of it and we will see how he does. They did up the dose of the Methotrexate though. Skyler did so well today. He actually talked to the doctors and nurses which was a first and he did everything they asked and was so cute about it. It was amazing I am so proud of him. He also did great with his lumbar puncture as well. He did get a little scared when we walked into the room, but who wouldnt? Its a scary room with lots of scary looking machines. I hate walking in there and Im an adult, I cant imagine how a four year old must feel. The nurses were great with him though and had a helicopter for him to play with while they gave him the sleeping medicine. I have to say I was so impressed with the RTU today (rapid treatment unit) They remembered me and knew that I am still kind of freaked out about germs, so when I walked in everyone in that room had already put a mask on without me even asking. I cant even tell you how good that made me feel. I was so appreciative of them for caring about my feelings and doing that for me, even if they did think it was unnecessary. It was like a little burden of worry was lifted off my shoulders, and although it seems like such a small thing it was a big deal for me and I am grateful.
Skyler woke up fast from the anesthesia. He was awake before he even made it back to the recovery room. The nurse said that right when he woke up he said "Im done and it only took one whole minute, Im good at this" He is so funny. When I walked back there he was as happy as could be and seriously high as a kite. He has never reacted to anesthesia this way and it was hilarious. He was super happy and saying the funniest things while he was swaying all over and saying "whoa". He had everyone in the room laughing. What a little cutie.
I was looking through some older pictures of Skyler when he first got admitted and came across these:
He looks so miserable.
We have just come so far, its hard to think sometimes that Skyler actually went through that. These past couple of weeks when Im laying in bed I will get flash backs of when he was so sick. I have tried to block out some of the memories because its just too hard to think about, but sometimes they just hit me and its so hard. I have no clue why its all coming back now. As I was going through it and living the nightmare day in and day out I got numb I think to some of it, and I think thats how I was actually able to make it from day to day. But now that I am home and he is doing better I think back to where we were and how close I came to losing him and its more than I can handle sometimes. I have been having huge headaches everyday and will start crying at the littlest of things. I hope this part passes soon and Ill be able to start coping with things better. I think I just have a big fear of it happening again. But I know we have been so blessed and many prayers have been answered and for that I am grateful. I am also grateful for the continuing support, love and prayers. I have the best family and friends. Thank you all.