Monday, May 23, 2011

Skyler is starting to get mouth sores from the chemo.  We have gone this long without getting any so I thought we got lucky and we wouldnt get them.  Boy was I wrong, his mouth is full of them!  The sad thing is they can go through his whole GI tract and out his bum.  It hurts him to eat and brush his teeth now.  He also looks really yellow to me today and has been hanging out with a temp of 100.0 for a couple days.  He also still is covered head to toe in bruises.  It just seems like all of a sudden the chemo is hitting his body hard.  He is looking beat up and just not looking good.  We have clinic again tomorrow for more Vinc and PEG shots.  Hopefully his counts come back ok and he doesnt spike a high fever again.  Im really worried that this oral chemo he is taking everyday is affecting his liver.  Please pray his liver hasnt taken a hit and that this low grade fever will go away.  Also please pray for our little cancer friend Andrew who is down in the PICU right now.  He is pretty sick and miserable right now.  I have a place in my heart for this little boy because we have been there and I know how hard this is.  Please pray his little body will heal and he can get back up to ICS to finish his last round of chemo.  Thank you 

6 comments:

Briana said...

oh, poor skyler! darn DI! i hope he finishes it out without as much trauma as the first half. keep us posted!

Kris10 said...

Sending prayers from KY. Love reading your blog. Skyler is a true hero! Will be praying for you and your family also. Hoping you feel the presence and comfort of Heavenly Father, and see His healing touch on your little angel!

Jenny MacDonald said...

Sending prayers from New Jersey! Hang in there!

Chelsie said...

Oh, I'm so sorry this is wearing on him so much. You're in the second half, right? I can't remember how long that takes. I hope it isn't much longer and his body and your spirits get a break.

Most kids need transfusions during DI, it just really does a number on them.

I hope his liver is doing alright. Hang in there!

Anonymous said...

St. Andrew's 3rd grade class in WI has had Skyler's name on their prayer list all year, he gets a special prayer just for him from the class in the morning. We will add Andrew to our list. We're praying for both of them, and their families also. Please keep us posted.

Anonymous said...

I'm sorry Skyler is feeling so crummy right now. Mouth sores stink and they are so painful. Just remember that Delayed Intensification is exactly what the name is... intense..ugh. That was the phase that was hardest on my son (Mathias). He needed platelets and looked crummy and was all bruised and beaten looking. But I can offer words of encouragement, because once he made it through DI, he improved so quickly and felt so much better so fast. I'm praying for time to pass quickly for Skyler to finish the rest of this phase so you can get on to a smoother time of it in Maintenance.
-Krin