Monday, July 4, 2011

Last night we had a little scare when Skyler's oxygen kept dropping down to the low 80's.  He ended up needing to be put on oxygen the rest of the night to keep him above 90.  The thought was that fluid was accumulating in his lungs causing him to not be able to breathe very well so we went down and got a chest x-ray.  Surprisingly his lungs were clear, thank goodness.  He was still on oxygen for the rest of the night and we still dont know what was the cause but he hasnt needed it at all during the day.  The methotrexate drip just finished and now he is on fluids to try and get it out of his body.  Besides needing oxygen last night he has done surprisingly well.  He hasnt had any other side effects so far (knock on wood)  He gets IV zofran every six hours so he hasnt felt nauseous at all.  He isnt even too puffy right now.  I hope he can continue on like this and he will be able to tolerate it well for his other rounds too.  He has been so happy lately which is such a big change from where he was so hopefully things are headed in the right direction.  He is still having fevers but they are spaced out alot longer now.  Instead of Tylenol every four hours he has only needed it twice since being admitted.  Thank you so much for the prayers during this time.  I can see they are being answered.

I met a mom last night that is just starting out in the world of cancer.  Her 5 year old son was diagnosed with a brain tumor and is so sick right now.  I could see the pain and sadness in her eyes that I know so well.  Its heartbreaking seeing other families who just heard those awful words "Your child has cancer"  because I remember being there when it was so new and confusing with such raw emotions that I have never felt before.  It was the hardest thing and still is the hardest thing I have ever gone through.  I just wanted to give her the biggest hug and tell her everything will be ok.  I wish another little boy didnt have suffer.  Seeing other children going through what Skyler has gone through makes me even more passionate about this Curesearch walk coming up on Saturday.  My hope is to one day have a cure for these kiddos so other kids wont have to suffer so much.  I want to thank everyone who has donated or signed up to walk with us.  I am so grateful for you all and for your support.  I have heard people say that its just too sad to think about so thats why they dont get involved but thats EXACTLY why people should get involved.  It IS sad.  Its beyond sad what these kids go through.  We cant just turns our heads and pretend it doesn't exist.  So thank you thank you thank you for taking the time to help.  Every donation no matter the amount helps.  If you cant donate thats fine just showing your support is wonderful.  Letting these kids know they arent alone and that people care means alot.  I cant wait to meet alot of you Saturday and to show Skyler how many people love and care for him!


susi and adam said...

So wish I could come on Saturday! Saying a prayer for Skyler again tonight that he continues to do well through this next phase. Hugs to you both!

Brandi said...

We can't wait for is going to be an amazing experience and my whole family is really looking forward to it. Thank you for putting your story out there so that those of us not in the "cancer world" can appreciate what we do have and can give back a little to help those fighting this awful disease. See you Saturday!

Erin and Kace said...

We love you Crystal and Skyler! Praying for you daily.