Sick little boy tonight. We dont have barf buckets anymore so he uses plastic cups that way we can just throw it away when he is done instead of washing out the bucket.
He got sick of holding it so he just stuck it to his face. Kinda funny yet sad at the same time.
I know this is Childhood Cancer Awareness Month and I will continue until the day that I die to try and raise awareness and find a cure for childhood cancer, but yesterday I learned about a 14 year old girl that is trying to raise awareness for Mitochondrial disease, a disease which her 2 year old brother is battling. When I read this email I was touched because I know how devastating this disease can be because my friends little girl actually passed away this year from it. I was so privileged to meet this little girl when she came up to visit Skyler when he was in ICS. I immediately fell in love with sweet Maggie and was devastated to learn of her death. Mito is a progressive disease and just like childhood cancer it doesnt have a cure, it also takes lives of sweet innocent little children like cancer does. It is not rare, but is rarely heard of. I was so touched by this 14 year old girl named Delaney and what she is doing for her brother. I can relate to the helplessness she must be feeling because I have felt it when watching Skyler suffer and know that there was nothing I could do to make him better and to take away his pain. She has started a Face Book page to raise awareness and is trying to get people to like her page and to learn about Mito.
If you are on FB you can visit her page here Http://www.Facebook.com/wishgrantedproject
Also here is a picture of sweet Maggie who was taken from this earth and her mothers arms far too early from this disease.