I'm sorry my last post was such a downer, I'll be more positive today I promise. Skyler had a lumbar puncture the other day so they could put chemo into his spine. Usually he would have a aspirate too, but they said they had no reason to think his cancer has come back so they didn't do it this time. Yay! On his recent chest x-rays they saw that he had alot of fluid around his lungs, which could have had something to do with his oxygen dropping, so they decided to place a so they could drain the fluid. They also replaced his dialysis catheter too at the same time because that has been giving them problems. They placed the catheter coming out of his chest this time instead of his neck so its MUCH more comfortable for him. And also since they placed his chest tube his heart rate has come down and his oxygen level is so much better. They were even able to come down on his vent settings again and he is tolerating it great! They also were able to get his medications under control so he is much more comfortable. Thank goodness! It had gotten to the point where they had to put restraints on him because he was trying to pull his breathing tube out. (Not good) But today he looks better and seems calmer. So momma is calmer too :)
This is Sky getting a bath. He usually shakes and shakes while he gets his baths so today they put him under heat lamps which helped a ton.
I took this one a couple days ago and just thought it was funny because he was so uncomfortable and couldn't figure out a place to put his arm that felt ok and this was where he chose to put it. He kept it resting on his head like that for so long. It was pretty cute!
A couple days ago one of Skyler's cancer buddies came and gave him this little book. She made it just for him. It says Cami and Skyler's perfect day, she drew things that they would do on a perfect day. So cute! Thank you Cami!!
Today I received tons of cards in the mail for Skyler from all over the country, even Canada and Australia. It was awesome reading all these sweet cards for my little boy from people that haven't even met him. There are so many good people in the world. Thank you everyone who sent a card. Skyler LOVES cards and I cant wait until he wakes up so he can see these!!!
Skyler opened his eyes today and watched Scooby-Do!!! Amazing!! Look at those eyes, I LOVE you Skyler and I LOVE seeing those big !