Wow, today has been quite the eventful day. Skyler was scheduled for an ultrasound of his abdomen to check and see how his spleen was doing, and he was also scheduled for a CT scan to check for any new infections or to see if the ones he has see has have spread. I didn't sleep at all last night because I was so worried about what they would find. To my great surprise the CT scan was clean!! They didn't find any new infections and the ones he has are improving a little. I almost kissed the doctor when she told me, yup even a girl doc because that's just how happy I was!!! The ultrasound even showed that the fungal balls are improving also.
Also since he has been doing good with going down a little on the vent settings, they thought it would be a good day to put him on a spontaneous breathing setting. This is where he basically breathes on his own. He still gets a little support but he initiates all the breaths and it exercises his lungs. I was so nervous about how he would respond but he did great! He was able to stay on it for forty min. and didn't have a problem. They are doing another one tonight, and then probably three times a day from now on. We need to get his lungs strong enough so they can take the tube out. His muscles are pretty weak because he hasn't had to use them for a month but we were surprised at how well he did today.
They also had to replace his PICC line today. This is his central access that goes straight to his heart. His other one got clotted so they had to place a new one. He did great with this also. He is in some pain right now but are giving him medicine to help. I can tell when he is in pain now because he actually does a cry face. This is sooo hard for me to see. Before when he was more sedated he couldn't really show his pain but he can now and its horrible.
He has been so awake today, its so strange for me to see him this awake because its been so long. Earlier he was kinda moving around and then all of a sudden he tries to sit up! He looked right up at me with this look of "Mom get me out of this bed" and tried lifting his head and body! It was so crazy, I panicked and had my mom call the nurse in because i just didn't know what to do. Its a good thing though but I have to get used to all this new stuff again. So to sum up today though, it was crazy and wonderful! Thank you for all your prayers.