These past couple of days we have just been kinda hangin out. There havent been any real big changes. Although last week they told us that one of the infections he had called CMV wasn't active so they stopped his antiviral medication, but last night they came in and told me that there was some sort of mix up in the lab and it actually is active. That was a bummer to hear because he has lost out on days that he could have been on the medicine. However they started it again last night and hopefully will do its job soon and get rid of this infection. He is still having high fevers through out the day and his blood pressure will drop a couple times through out the day also, so they are going to take him in Monday for another CT of his brain, sinuses, chest and abdomen to check and see if there is anything that they are missing or if the fungus has grown in other parts. So please pray that there isnt anything bad that shows up on that. I just dont know how I would handle another thing thrown at us.
On the bright side though Skyler has been a little more awake and aware of things lately. Last night and this morning he heard me talking to him so he opened his eyes wide open and looked at me while I talked! It was amazing! He kept them open for at least 10 seconds. He was so hard not to burst out in tears but I didn't want him to see me do that so I kept a big smile on my face. (That was a toughy) He also has been bringing his hands up and itching himself. That is such a big deal for him because he is sooo weak. Also up on the fourth floor when he first got sick his only real comfort was to put his hands up to his mouth and he hasn't been able to do that since being down here because of the bi pap he was on and then being intubated and so sedated, but he has been doing that lately. He will just lay there with his fingers all the way in his mouth. Its actually really cute. It has the nurses so worried that he is going to pull out his tube though. It's funny watching them be so nervous about it when I know that that is just not going to happen. Besides he is really good about leaving all the tubes and stuff alone if he knows that it has a purpose. I love you sweetheart, keep up the good work!
Here are the nurses turning him to his other side. They have to do that every two hours so he doesn't get any .
This is a pic of the board that has info about labs and such. I think its so cute that they did it Super Skyler style!
And here is a shirt that I have been sporting around the hospital lately. Very stylish I must say :)
This is a pic of the nurse about to administer the medicine that they just started him back on for the CMV. They have to gown up like they do when they give chemo.