Yesterday I wasn't feeling great. My stomach was sick and I had a headache. I was afraid of giving whatever I had to Skyler so my wonderful mother came and stayed with Sky while I spent all day in one of the sleep rooms here. That day wasn't the best for Sky either because he kept throwing up. Throwing up is not a good thing when you are intubated because you have a risk of aspirating it. Scary and not fun stuff. The nurse was saying it could have been with drawls because they tried weening down on his meds again, but I think I may have gotten him sick and I feel SO HORRIBLE about it. Poor baby! Today I am feeling much better so I decided I come back in (with a mask though) and I walked into this....
Skyler was wide awake and trying to sit up, so the nurse lifted him into the sitting position. Amazing! Its been a long time since I have seen him do that. He was even able to keep his head up mostly by himself.
When they layed him back down he turned himself on his side and grabbed onto the railing. He was scooting himself over and dangling his feet off the bed. He was trying so hard to get out of that bed. It made me laugh and smile and cry at the same time (I tried hiding my tears though so he wouldn't think I was sad) And then at one point when we got him back in the bed, he scooted his head to one side and had both legs hanging off the bed. He would have kept going right off too if we didn't grab him and put him back in the middle of the bed. The morphine kicking in too seemed to help the escape as well.
Since Skyler has been on dialysis for so long his kidneys have kinda just been "chillin" The machine does all the work because Skyler's have been so sick. But today they decided to try and challenge his kidneys and see if they will make urine like they are supposed to. They will be taking him off dialysis for about four or five hours and then put him back on for about eighteen hours. Hopefully this will allow the kidneys to try and work on their own. If Skyler can get off dialysis for good or at least get off the continuous dialysis it would be great for him, so lets cross our fingers for some PEE!!!
Also the family of a little girl that's in the PICU with us gave this to Skyler. Its a superman that you hang from the ceiling and it flys around in circles. Its so cool and Skyler loves it! They were hanging it when I walked in and he was watching with wide eyes. It was so sweet of that family to think of Sky when they are also going through such a rough time. I am so grateful, thank you!!!
Skyler I love you with all my heart and I am SO proud of you and admire your strength. You are amazing and I am so lucky to have the honor of being your mother!