Latest Update: Yesterday they heard a heart murmmer for the first time. This concerned the docs because they said it could be caused by some fungus growing on his heart. Considering what happened to his daddy (a ) this scared me. So they did an echo on his heart and found that there is not fungus growing, thank goodness, but they did see some lightening on one of the heart muscles. They arent sure what that means but they are going to keep a close eye on it. They say its not causing any complications right now and that they think the murmmer is caused from having such high fevers. (these fevers are going to last for at least a month and a half by the way) So I guess thats good news for now.
Also, during the night a section on the right side of his head started swelling for some reason, so they did an ultrasound on it to see what they could find. They were thinking it could be a collection of blood, but they couldnt really see enough to determine exactly what it is. It has gone down today so thats a good sign. Just in case they are going to keep his platelet count a little higher than they have been. They do platelet transfusions everyday because his body just keeps eating them up, especially his spleen. A normal platelet count is over 100 and his drops down to about 9 to 15 everday.
It just seems like there is something new everyday. He just cant catch a break. It's such a different world down here in the ICU. These kids arent just kinda sick, they are fighing for their lives. I have seen several kids down here lose that fight and that just makes this all the more real and scary for me. On the other hand, I have seen kids that have been down here longer than Skyler that have been able to get better and go to a different floor, so I have to keep thinking positive and not let my mind wonder over to the bad things. So for some happier news: Skyler got a pretty sweet new bed last night. He has some nasty on his bum so they finally got a new bed that is going to help with that. It goes right over his other mattress and blows up. Its filled with air and the air moves around so there is never one spot that is putting pressure on his body. Its pretty cool and I want one for myself!
Here is a pic of the staff getting it set up. They had to hold sky up in the air so they could get it on the bed. Its funny that so many people had to help hold up such a small little body.