Wednesday, October 13, 2010

Update

Latest Update:  Yesterday they heard a heart murmmer for the first time.  This concerned the docs because they said it could be caused by some fungus growing on his heart. Considering what happened to his daddy (a heart tumor) this scared me.  So they did an echo on his heart and found that there is not fungus growing, thank goodness, but they did see some lightening on one of the heart muscles.  They arent sure what that means but they are going to keep a close eye on it.  They say its not causing any complications right now and that they think the murmmer is caused from having such high fevers. (these fevers are going to last for at least a month and a half by the way)  So I guess thats good news for now.
Also, during the night a section on the right side of his head started swelling for some reason, so they did an ultrasound on it to see what they could find.  They were thinking it could be a collection of blood, but they couldnt really see enough to determine exactly what it is.  It has gone down today so thats a good sign.  Just in case they are going to keep his platelet count a little higher than they have been.  They do platelet transfusions everyday because his body just keeps eating them up, especially his spleen.  A normal platelet count is over 100 and his drops down to about 9 to 15 everday. 
It just seems like there is something new everyday.  He just cant catch a break.  It's such a different world down here in the ICU.  These kids arent just kinda sick, they are fighing for their lives.  I have seen several kids down here lose that fight and that just makes this all the more real and scary for me.  On the other hand, I have seen kids that have been down here longer than Skyler that have been able to get better and go to a different floor, so I have to keep thinking positive and not let my mind wonder over to the bad things.  So for some happier news: Skyler got a pretty sweet new bed last night.  He has some nasty pressure sores on his bum so they finally got a new bed that is going to help with that.  It goes right over his other mattress and blows up.  Its filled with air and the air moves around so there is never one spot that is putting pressure on his body.  Its pretty cool and I want one for myself!
Here is a pic of the staff getting it set up.  They had to hold sky up in the air so they could get it on the bed.  Its funny that so many people had to help hold up such a small little body.


12 comments:

lindsay Roscoe said...

Poor little guy! He really is an incredible kid!

Anonymous said...

Thanks for the update! You both are in my thoughts and prayers constantly. I hope the little guy gets better soon. He has been through so much. And I can't even imagine what you go through as his mama. Bless you both and know that people are praying!

Amanda said...

Man he is a fighter! Love you Sky, love you Crystal. Skyler, you are a fighter, keep up the good work!

I want one of those beds!

Chelsea said...

I am so glad he is going to be nice and cozy in his new air mattress! He is amazing and so are you. I am loving all your updates! Keep 'em coming. Its good to know you're hangin in. XOXOX

nsudburyfam said...

I think of you and pray for you every day. I hope that Skyler will start improving and that he will catch that break you both deserve. What a fighter!! It's really amazing how strong you both are.

Lindsey Hill said...

Im glad he is getting a comfy bed, he deserves to be as comfortable as possiable!!! Love you guys!! THinking of you always!

Jodi Mortensen said...

Strongest kid around! Skyler you are so incredibly tough! just want you to know that ALL your cancer buddies are rooting you on every day! -Our favorite Dr. Seuss quote "I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!” You can do this Skyler! Keep up all the good work Crystal!
Love Carson & Jodi

Beth.. One Blessed Nana said...

he is certainly a strong little boy! so glad that he is better today. I am praying for him daily.

Did you get the email with the prayer button?? It is a button that you will place on your blog and then others can copy the code and put on theirs so others can pray for Skyler!

Email me if you didnt' get it

bethherring62@Ymail.com

Dani said...

Still thinking about you and praying every day. Skyler gets to live the life of luxury in that bed....lucky guy! We love you guys and you are in our thoughts daily! Keep fighting skyler..you are awesome!
Love ya,
Dani and Chase

LisaShaw said...

I found your blog and precious son through Edie at RichGifts who did your prayer button. I am praying for your precious son even now...

Praying for your family as well.

Blessings!
Psalm 27:13-14

Libby Carter said...

We're thinking and praying for you guys! Skyler's blog gets checked daily from the techs at smith's pharmacy!
Skyler seems like a fighter, hang on little man!

Cami said...

Just thinking about you both.....I find myself doing that a lot and I have not met either of you! I am happy that you got the best view in the house. when my daughter was up there, I loved looking over to see those rooms with all of the light coming in!
I love the fight that both you and Skyler have inside of you!
You both are so strong, and thank you for that example to me! You are such a sweet boy Skyler! We are praying for you!