Saturday, October 9, 2010

This cancer journey we have been on for two months now has been quite the rollercoaster.  We have had so many ups and downs.  At the beginning of this week things were looking great.  His CT didnt show anything new, his blood gases were improving, they started weening his vent settings down and going down on his sedation so they could try and get him off the vent.  I was starting to be able to breathe again.  These past couple of days though have been rough.  His blood gases have been getting worse than we have seen them for awhile, which led to putting the vent back on a higher setting and giving him more sedation.  He has been getting high fevers, his blood pressure keeps dropping really low, and his oxygen has even dropped low a couple of times.  We were getting used to seeing his O2 levels in the high 90's and now we have seen them in the low 80's.  He has been very unstable.  Today they did an ultrasound of his belly and found that his spleen is engulfed with fungal balls.  They have been treating Skyler with antifungals for weeks now so you would think that it would have taken care of this infection.  But they say this is one of the hardest infections to treat and it can hide in various parts of the body.  They put him on another antifungal medication so we will see how he responds to it.  I am scared out of my mind right now.  The usual optomistic NP seemed really worried and kept saying this is just really hard to treat.  Im so afraid that this is going to be really bad for my little guy so any extra prayers for Skyler would be much appreciated.  He is still fighting though and one thing I know for sure is that he is one tough and stubborn little boy!  Keep up the good work sweetheart, I LOVE YOU WITH ALL MY HEART!!!!

11 comments:

Lindsey Hill said...

Love you!!!!! Keep fighting sky!!! You are always in our prayers and thoughts!!!

Chelsea said...

We are praying hard here for you and Skyler. We love you both! You are both so strong! XOXOX

Amanda said...

We are praying as hard as we can and have sent the word for more prayers. we love you both more then you know. stay strong. you are both amazing!

lindsay Roscoe said...

Lot's of prayers are being sent to both you! As well as any dr or nurse attending to Skyler.

Anonymous said...

Sending tons of prayers your way. You and Skyler have been on my thoughts a lot today. I hope he responds to the new medicine! May God comfort and heal the both of you.

JACK's house said...

More prayers coming your way. Stay strong Crystal and Skyler...

Plain Jame said...

Crystal, you don't know me but I'm a childhood friend of Ben's. We grew up in St. George a few houses apart. I've been reading, and I thought I saw you last month when my baby boy was lifeflighted to primarys and stayed in the PICU. My thoughts are with you daily. There is a unique spirit about Primarys, and I know that the Lord is there, as well as Ben. Sky is such an amazing little boy with this HUGE spirit. He's so lucky to have a loving and caring mom like you. My prayers are with the entire family, but especially with Sky...

Beth.. One Blessed Nana said...

crystal - i am praying for sklyler fervently! I am just crying out to our precious Lord to heal this baby according to His will.

I have a friend who can make a prayer button that will link to your blog so others can put it on their blog and spread the word about little skyler. if you would be ok with this - please email me!

bethherring62@ymail.com

love to you precious one!

Eisha said...

O my heart is broken for you and I will pray my heart out! Saw a link on Amanda's blog about skyler, we were friends at oxford and now live in Australia!

johnjillhuz said...

Oh Crystal, I will truly pray for you and for Skyler. I am just upstairs in ICS with my Erin who has AML. I look in on your blog now and then and I just think you are something amazing. You have so courage and faith. Your experiences are difficult and you are pulling through so stronly.

Denise said...

praying for precious skylar.