Skyler is doing ok today. I have been expecting him to get worse because of these new infections, but he is hanging in there. In fact the staff came in today and was suprised at how good he looks. His labs are even doing ok. Wow this little boy is tough! Im actually kind of afraid to even tell people that he is doing ok right now incase he gets worse tomorrow (because thats how it seems to go lately) but I will take any good I can get right now. I'm learning to celebrate the good things now, even if its just a tiny improvement, because he is working SO hard to get there. These little things are actually a really big deal for his little body.
last night Skyler is doing a new thing with his tongue. He opens his mouth and just sticks out his tongue and keeps it hanging out there. The nurses are thinking its because he is more aware that there are a million tubes stuck in his mouth and gets a little nervous about it so thats his way of dealing with it. I think its so cute because it kind of shows a little personality coming from that little sleeping body.
Also today we were able to change it up a little bit and switch rooms. Every three days they have to take Sky off the dialysis machine to change out the circut, so it was a perfect day to switch. Our old room just had a teeny little window with a wonderful view of a wall. Our sweet nurse was concerned that we werent getting enough natural light so he switched us over to the best room in the house. It has alot of windows and actually a great view of the city. It was a nice change and much needed. (This picture isnt the best but you can see that it has more windows and its a little bigger)