After 7 weeks in we have finally made it back up to the 4th floor. For awhile there I didn't think this day would ever come. And after talking to one of the nurses last night I found out that no one thought we would make it back up here. I guess when you finally are starting to get better that's when the real truth comes out. The nurse told me that kids that have what Skyler had and are as sick as him dont usually get better. Most never get their breathing tubes out. They are calling him their miracle child because no one thought he would pull through this. But here we are and I am so proud of him, he is such a fighter!
We have been up in our new room now for about fours hours and to tell you the truth I am having some sort of PICU with drawls or something. Its such a different world up here. First of all its soooo quiet. I'm used to at least a nurse being in the room with him at all times, watching the doctors and nurses running around to different rooms, kids being life flighted in and being wheeled to and from surgery, kids crying, parents crying, code blues being called over the intercom, and alarms always going off. Up here its so quiet. A nurse doesn't come in unless she has to give a med or unless I push the call light, and no one is going to watch him while he sleeps. I'm pretty much scared to death up here, but being up here means he is getting better and that's great so I have to suck it up and put a smile on my face.
Skyler actually is doing so much better. It seems everyday he is getting stronger. He even did a little dance for me today when I sat him up (probably one of the funniest things I have seen in a long time) We have discovered a wonderful new thing called Music Therapy where they come in and sing to him when he has to have a procedure done or change the dressing on his bum wound. It helps him calm down so they dont have to drug him up to do these things. Its great and Skyler responds so well to it.
Tomorrow they are going to do a bone marrow aspiration to see where he is at with the , figure out what is happening to all his platelets (he has to get a everyday because they keep dropping so low) and to see where they need to go with his chemo. Because he had gotten so sick, they had to go off the normal road map they would use for his chemo treatments and kind of make up a new one for him. I think now they are wanting to get him back on a normal chemo plan so we will see what they have to say about it this week. For awhile there I kind of forgot he even had cancer because they were treating other things that were more life threatening. Now that we are back on the floor with other little cute bald kids and talking about chemo, its all coming back to me and I'm starting to remember that we still have three and a half years of this crazy cancer journey.
Here is Sky in his wheelchair with the Music Therapy girls
Here is Skyler and Grandpa just chillin while I'm getting everything ready to go up to the floor
Ty and Sky in the new room waiting to shoot the nurses as they walk in....they ended up shooting me instead