Well it looks like Skyler has a new fungal infection in his lungs and that is what has been causing his respiratory distress instead of just being fluid overloaded. He still has a lot of fluid on him but the main problem now is a new fungus growing in his lungs. This means that his central line along with his dialysis catheter have to come out. He is scheduled to go down to the operating room to get the catheter out in an hour. Since he wont have his central lines they will have to start about three new IV's in his hands and feet and instead of drawing from his lines everyday, it means pokes everyday. He is still on the bi-pap, but if they have to increase the settings they will think about intubation, which means being sedated again. (And just when he was back to his normal self again dang it!)
They need to do another CT scan within a couple of days or so to see if this infection is anywhere else. They are going to have to use contrast again which is another hit for his kidneys, but I talked to the renal doc today and she said that she is willing to let his kidneys go completely if that means saving his life from this infection. They have dialysis he can be on for the rest of his life or even a kidney transplant later on if thats what we have to resort to.
As far as chemo goes, they are going to be giving him a maintenance dose of each week now instead of starting him back on the regular course. So once again his cancer is on the back burner. The surgeons came and consulted about taking his spleen out and they said he is just too sick right now to do it. If it becomes an emergency situation then they are willing to take that risk, but for now that will also have to wait.
So basically we are back where we were in the beginning. He is getting really sick again. My day has consisted of crying and more crying. Lately I have so happy and smiling and laughing, but today if feels like I have been kicked in the gut over and over again. This just cant be happening again. It looks like this little stay in the PICU has turned into another long horrible stay. Please keep Sky in your prayers tonight, I am one scared momma right now.