The most recent news with Skyler is that he is going to have to go the operating room to get his wound scraped out and closed.  The wound guy came in to look at it today and saw that there is another layer of dead tissue that is on the top of the wound now.  It's all yellow and gross looking and he said he wanted it to be a pink color.  He said he could scrape out at the bed side again, but thinks that it probably goes down to the bone and would rather do it in the OR.  The problem about taking him into surgery right now is that his platelets are too low.  They were at 7 today.  They could just give him a couple units of platelets before he went in and that would make it so he wouldnt bleed so much during the surgery, but the problem is if his platelets keep dropping low everyday then after they closed it it would bleed underneath the skin and make a pocket of blood that would be a problem.  And the platelet problem is not going to be fixed until they can take his spleen out because that is what is eating up all his platelets.   And they cant take his spleen out until he can recover more and is free of these fevers.  But he has had these fevers the WHOLE three months we have been here and its still a mystery as to why he still has them.  So right now I dont think there is a plan on how to handle this situation.  They put him on another antibiotic and will see if that helps his fevers at all, which I'm sure wont because he has been on this one before, but I pray that it will.  Its just a big frustrating cycle right now. 

They are starting Skyler on the regular road map for his chemo now, but they have to wait until his counts come up to 750 before they can give it to him.  Today he is at 100, but they are giving him shots everyday to make his counts come up faster.  Im so glad that he is able be on the regular schedule for chemo but it scares me whenever they do give it to him because thats what has caused all this other crap for him.  I still have a love hate relationship with this poison!
One of the good things this week though, is that Skyler has been getting out of bed more and is wanting to do more things now which is awesome!!  He wants to play games and color and do puzzles.  He also wants to go out into the halls which is huge for him, he cant though because his counts are too low right now, but its the thought that counts right? 
The problem Sky is facing right now though is that whenever he wants to do something fun, it seems like that is when his meds chose to start kicking in and he falls asleep pretty fast.  He tries so hard to stay awake so he can play more, but the meds usually end up winning this battle.

                                                     This is Skyler doing a puzzle........

This is Skyler when his drugs are starting to kick in....

This is Skyler after the drugs have kicked in....

Poor little guy, but its kinda cute though!