Monday, November 22, 2010

Skyler's respiratory status just kept getting worse throughout the night and into the morning.  It got to the point where I made the doctors come in and do something before they even started their rounds. (I know Im getting kinda pushy around here, but I know what can happen if I dont make things happen)  They ended up putting the bi-pap mask back on him to help him breathe.  He actually is tolerating it well, other than the fact that he cant eat or drink, because he can actually breathe better now.  He even told me he couldnt breathe before they put the mask on him, and you know its bad when a four year old tells you he cant breathe.  They know that mostly it is due to being to fluid overloaded and he hasnt been able to pee it off so the fluid went to his lungs, but it also could be due to some kind of infection or he could be bleeding into his lungs.  They have done some tests and we will get the results back in the morning.  Right now they are giving him diuretics to hopefully get the fluid off of his lungs.  If that doesnt work he will be have to be put back on dialysis or intubated.  I mean, really?  After he has been doing so well?  Getting that tube out the first time was a miracle in itself, so Im terrified of them having to put it back in.  Hopefully his respiratory issues are just due to fluid and he can pee it out with all these diuretics he is on.
So about the blood in his stool, they just arent sure what it is from.  It isnt a bright red color, so they are just going to keep an eye on it.  They have done a couple tummy x-rays and the only thing it showed was that his bowels have slowed down and arent working too great, so they stopped his feeds and he is now on TPN which will be his nutrition right now.  It's a liquid that looks like Gatorade and it goes into his central line. 


10 comments:

One Heart said...

Thinking of you and Skyler. Still praying. Much love your way.

JACK's house said...

Hang in there both of you!

Amanda said...

We will once again pray for Pee. Keep fighting Skyler and Crystal.

Amanda and Millie

Lindsey Hill said...

We love you!! Hang in there! Lots and lots of prayers are coming your way!!

Amy said...

Our family continues to pray for your Skyler. We are praying that his little body can catch a break and keep it!

Dani said...

Many prayers for you and for pee!!! Love the pic. Cant sleep without all the buddies in bed!

lindsay Roscoe said...

SOmetimes I just don't know what to say. It just seems like more then any one person should have to go through. More then one tiny little body should have to endure. We will continue to pray.

Anonymous said...

I read your blog all the time and pray for your little guy! He seems like such a sweety and you are such a great mommy! My heart breaks for the trials you're having to endure. You have such a good attitude about it all! :) Hang in there! I can't imagine how hard this must be for you...

Chelsea said...

Way to go being on top of things Crystal! You know exactly what your boy needs, and he is SO lucky to have you there looking after him! You are both so strong, and Im sorry you are having a little set back. Keep up the good work! We are praying here. Love you guys. XOXOXO

Joycelyn Vest said...

You don't know me, but I also used to work with Kathy. It breaks my heart to know what you and Skyler are going through. I can only imagine how hard this is for you to watch your son go through so much pain when he should be laughing and happy and thinking about what he wants for Christmas. He is so sweet and innocent and it seems so unfair. I'm sure there is a plan and there are things to be learned from all of this, but it sure is hard to understand why. Know that there are people praying for you all over this country. I'm in Alabama and I will be praying for you and Skyler, that our Savior will hold you both in his arms and that you will feel His love, comfort and healing. Skyler is touching the lives of so many people.