Monday, November 29, 2010

Yesterday Skyler went in for an MRI to check his belly and also to check and see if the bone underneath his pressure sore was infected.  We were told that the bone shows no sign of infection (thank goodness) but it did show numerous little abscess covering his liver, spleen, and kidneys.  They are too many and they are too little to drain, which would be the normal way to treat abscesses, so they are starting him on a new antifungal.  They say these abscesses are treatable but the treatment is MUCH longer.  They also may have to start him back on an antifungal he was taking that was really hard on the liver and kidneys.  The decision they are waying now is whether to keep him on this antifungal and kill his kidneys for good or to get rid of this infection. (the answer is obvious but devastating) His kidneys will most likely be shot...huge bummer!

So we made a decision on the spleen, it will be taken out tomorrow morning.  They decided to do it right now because he will not get any better with it in, his counts are ok right now, he is already intubated, and they have to start chemo again this week so his cancer doesnt come back and the spleen has to be removed first or the chemo wont really work.  This is such a huge deal for Skyler.  They are worried that his blood pressure with drop and other life threatening things may occur because of how sick he is right now, but they just have to take the risk right now because they have to.  I am so scared!!!!  And I thought waiting for him to come out of Saturdays surgery was hard!  They may just have to hook me up to Sky's Fentanyl drip tomorrow.

Right now Skyler is hanging in there.  His bilirubin is up right now so his skin and eyes are yellow, but other than that there hasnt been any big changes today.  The eye doctor came and looked at his eyes to see if the fungus had made its way up there and it hasnt, so thats really good news. 

I have wanting to try and cheer Skyler up so we put up a Christmas tree and hung snowflakes.  We are very festive in here.  My mom came up with the idea of a superhero tree, so she got lots of little superhero guys and we put them on the tree.  I think its super cute!  I also cut up a million snowflakes and hung them up.  Here is a picture of some but it doesnt do it justice as to how many I actually put up.  I didnt want to celebrate Thanksgiving, but Christmas is for Skyler so Im going to make sure he has a good one!





Superman is our star this year

19 comments:

Lindsey Hill said...

I know that those doctors are so skilled and know what they are doing, he is in such good hands, but most of all he is being held by heavenly father who loves you two so much!!! And we love you so much and will say a special prayer tonight in skylers behalf. Love you crys!!!!

Jason said...

I just figured out that I can leave comments here too Crys! ;) Jen and I are praying for you two every time we say a prayer. You have so much support that you don't even know about yet and we're all here for you and your little man! Love you guys!!!

Alison said...

Dear Crystal,

You don't know me, but I wanted to extend my love and support to you and your sweet, beautiful son. You have our prayers and faith. I think of you both often. Your Motherly goodness is inspiring. We'll be praying for you, Skyler and his doctors.

Love from South Carolina,

Alison and family

Deena said...

Crystal- You and Skyler are in my thoughts & prayers, I have even shared his story with some of my coworkers who have also shared it with their families, there are lots of people who will be thinking of you and your family- especially tomorrow. I know that we were never the closest of friends but please if there is ever anything you need, even just someone to yell at and vent please feel free to call me! Anytime! (801)706-9964 ~Deena Tolman

Anonymous said...

We're praying for you in New Jersey as well. May the angels continue to surround and sustain you all.

The MacDonald Family

AmberLee said...

Your sweet little boy will be in my prayers tomorrow, as will you. Skyler is definitely a super hero. We can all learn something from his amazing strength!
I pray that you will be able to feel our Heavenly Fathers arms around you tomorrow, to give you comfort and strength.

Jodie said...

You and your sweet little boy will be in our prayers. Your faith is amazing! Hang in there!

Cyndy said...

Thinking of you and your sweet boy! Praying for you both!

Melissa said...

we are always praying for the two of you, but we will pray EXTRA hard tomorrow! Good luck to Skyler and I hope you are able to feel some peace tomorrow!!!!

Anna said...

You don't know me either. I used to work with Kathy and have been following your story since almost the beginning. I just wanted to say how amazing I think you are and how much I admire your and your son's strength! Your faith is unbelievable! Your little boy must be one of God's choicest sons! I haven't even meet him and I can feel of his special spirit. He is definitely a super hero in every way! I know Heavenly Father's angels are with you and Skyler and I am sure they are cheering for you and him and helping in anyway they can.
May He continue to bless, comfort, and strengthen you!
--the Smith family
My family and I are praying for you and Skyler too! :)

Chelsea said...

Tomorrow morning will be hard, but you have the strength of many prayers behind you and Skyler. He is truly a Super-Skyler... He is a hero to so many and so are you! Hang in there tomorrow. I'll be thinking of you both all morning. XOXOX

Anonymous said...

Crystal,
You are a super hero mama! Your strength & love for that sweet boy is inspirational. I came across your blog a few weeks ago and have been praying for you all ever since. Skyler is such a fighter and he and you will remain in my thoughts & prayers especially today. Prayers from California.
Julie

Amanda said...

Praying as hard as we can today.

Amy Jaten said...

Thinking of Skyler and you all day today. I wish him well with every fiber of my being. We don't know eachother- I am yet another random person that has been impacted by your beautiful son and your story. Sending you all my love.

lindsay Roscoe said...

This post makes me cry. You are a good mama. What a sweet thing to do for Skyler when i am sure the last thing you want to do is celebrate Christmas right now. We also will be praying hard all morning and all day. I will put your names in the temple.

Dani said...

We are praying all day today! Even though we haven't met we love you guys!!!! Lots of love from St George!

Amy said...

May our heavenly father wrap his arms around you both...we are praying with all our hearts that Skyler will come out of all this soon and that you can both find some peace in it all!

Kate VanGheem said...

My prayers are with you and your little boy. From one Cancer mommy to another- you are stronger than you know!
Blessings~Katie

Anonymous said...

I am so glad that things went better then you expected! I hope his recovery goes well too! I know you are on a long road, and have been on one for a long time now! But know you are an inspiration to all Mom's, all Parents, all care giver's and to many more! You are so amazing! Know thoughts and prayers are with you all the time! Hang in there!