Friday, November 26, 2010

Plan for tomorrow:

Skyler hasn't been able to get the fluid off of his lungs he needs to to be able to breathe ok, he is needing more support on the bi-pap today so they are going to take him down to the operating room tomorrow to place another dialysis catheter.  He will need to be back on dialysis for awhile again to remove this fluid.  They will send him back to the PICU intubated because first of all he needs it, and they want to be able to do some testing on him while he is sedated and on the ventilator.  They are going to do another MRI of his pelvic region and see if the bone underneath his wound is infected, also do another full body CT scan, and do some biopsies of a couple bumps be now has on his legs.  They are little hard bumps underneath his skin and are really tender to him, so they want to know if they are little balls of fungus.  They will keep him intubated for at least a couple of days, just depending on how he looks when he comes back and how sick he is. 

So here we go again, we are officially back at the beginning of this horrific journey.  I just cant believe he is going to go from talking and dancing again to being sedated and having a machine breathe for him.  Ugh!  I feel like I am suffocating, and seeing him like this again literally hurts me. 

7 comments:

Lindsey Hill said...

Oh Crystal I am so sorry, you two have been through so much. He is such a fighter, and has so many prayers on his behalf. Know that we love you and are thinking about you day and night.Love you!!

Kasey, Nicole, Lexie, and Kenzie said...

My heart is hurting for you. I am so so sorry. Our prayers are still with you. If there is anything our family can do PLEASE let us know.
All of our love,
the Higley's

jones6 said...

Crystal, I met you the night of the fundraiser. My heart aches for you and I am sending you all the good energy and light I can find. You have a little angel and I am so impressed by your strength. You can do this! Hang in there girlie!
Tayna

nsudburyfam said...

I am so sorry. I wish i could take away your pain.

Anonymous said...

Crystal & Skyler,

I do not know you but have been following your blog from a cancer friends blog. Please know you are both in mine and my sons prayers everyday. We have come to love you both just from your battle and posts and our hearts go out to you. As a mother myself I can not imagine being able to have the incredible strength you have. You are a perfect little team! We are cheering for you! and spreading the word to pray for Skyler!

Anonymous said...

Crystal, my sister who has been following "kisses for Cami" told me about your son's blog. I know you don't know me but I just wanted you and Skyler to know that after reading how you both have courageously battled trial after trial these past few years, you have impacted my life and changed my perspective on how I view my own trials. I just wanted you to know that prayers on you and your sons behalf are being offered daily from Arizona. You both are amazing and we are praying for Skyler's recovery!

Anonymous said...

Hey Crystal- It's Meghan Clement (Gregory), just want you to know that I am thinking about you. You and your little man are in my prayers. Love you!