Sunday, November 21, 2010

We are back down in the PICU tonight.  Man, just when I was getting used to the floor too.  But that's just how things go right?  Whenever it seems like Skyler is doing better, we get slammed with something else.  Over the past couple of days he has just been getting more puffy and today his respiratory status just went downhill.  Turning him on his side earlier tonight made him drop his O2 into the 60's.  Earlier in the week he was only on half a liter of oxygen and tonight we had to go up to a liter and a half.  Not good :( 
We have also been finding blood in his stool today.  They arent exactly sure what is causing it yet, so basically we are just down in the PICU because they need to keep a closer eye on him and if things do go south we are here.
Earlier in the day the Oncologists were thinking about scheduling him for surgery on Wednesday to take his spleen out, but now Im not sure what the plan is.  The one thing that I have learned from being here so long is that we have to take it one day at a time, and sometimes one hour at a time because things are just so unpredictable.

9 comments:

johnjillhuz said...

Crystal, I am glad Skyler is in good hands in the PICU, but I'm really sad that you aren't across the hall anymore. It is so busy here and I wish I could get over to visit you. I was always nice passing you in the halls. I'm so sorry about Skyler's Oxygen. It is so true that you have to take it hour by hour. You have to expect the unexpected. Fevers and infections can happen so fast. I will say an extra prayer for Skyler tonight!

Lindsey Hill said...

Sending lots of prayers your way! Love you guys so much!

nsudburyfam said...

Seriously?? I am glad you are in good hands, but he just can't catch a break! I hope he's feeling okay. Tell him we say hi and we are so glad we got to meet him today. We love you guys!

-Mystee

Kristin said...

Oh no, I'm so sorry just when things seem to be improving you have to go back. I'll keep Skyler in my prayers and you are right, one hour at a time. xoxoxo

Michelle and Sean said...

Crystal I am so sorry that there is another thing keeping him from recovering. We continue to keep you both in our prayers. I hope a plan will be made that will help him and get him feeling better.

Dayna said...

Oh, Crystal, I'm so sorry. I can't imagine how hard this is on you and Skyler. You are very brave people and my personal heroes! My prayers are always with you both.

Dani said...

Darn! I was loving that he was on the ICS floor. You are in good hands though! We will be praying for a speedy return to the 4th floor!

Chelsea said...

Darn it! Im so sorry Crystal. This roller coaster has just got to be SO difficult for you. I am praying that he will be sent back up to the 4th floor before you know it! XOXOXO

Cami said...

It may be "easier" in the PICU bc the nurses are always keeping an eye on him, but I never enjoy reading taht he is up there. I hope he gets back up to the 4th floor in a real hurry! I send my thoughts and prayers your way! If there is something that I have learned, never get too high or too low. Try to stay even bc it is an hour by hour thing! You are an admirable mom!!!