Surgery update:
Sky just came back from surgery. It went ok. When they opened him up the spleen was attached to his abdomen so it was harder than they thought to get it out. He bled ALOT!! His blood pressure dropped but they were able to transfuse him with four units of blood pretty fast so they were able to stabilize him ok. They said the spleen was huge and very abnormal and it looked engulfed with fungus. He is back in his room right now. He was awake when they brought him back and looked like he was in alot of pain so they gave him some more sedation. He is sleeping right now. He still has a drain in his belly to drain extra blood, and also an IV that goes right into his belly that drips narcotics into him to help with pain from the inside.
Thank you so much for all your prayers!!!! It went alot better than I thought, and hopefully he can start to get better from here on out.
25 comments:
Skyler you are AMAZING!!!!!!!!!!! What a blessing!! Love you two!!!!
You don't know me, but I have been following Skyler and praying for him like crazy. I'm so glad the surgery went okay and I will continue to pray for you and Skyler until he beats this!
I've been thinking about you guys all morning - so glad to see an update!
We're so glad to hear things went alright. And that that nasty spleen is out of there now! I hope that helps things a ton.
You guys are amazing!
I just found Skyler's story and have been reading back through your history. Bless your sweet heart. Nothing is as difficult as seeing your child in pain. Our baby was in the NICU for 10 weeks after he was born and then had open heart surgery at 5 months old. There is just nothing that can ever prepare you for seeing your child hurt, and just wanting to do everything in your power to make them feel better.
I think you are so amazing, and although I feel like I have a little insight into how you feel, I still don't know how you do it! We will pray for Skler and keep him in our thoughts. What a beautiful little boy who just shines with goodness through his eyes!
SKYLER, YOU ARE AMAZING!
You and Skyler are such an amazing duo. (Amy Fairbanks from the ALL-KIDS group on ACOR.org told us about Skyler.)
Our granddaughter Elizabeth was diagnosed with ALL when she was 23 months old - she's survived fungus, 28 months of chemo and then relapse in CNS and bone marrow, followed by more chemo, radiation and a bone marrow transplant. She turned 9 in September and is 3 and a half years post BMT.
The fungal infections are so hard - we were lucky in that Elizabeth's was on her elbow and didn't get into her blood but it still required 6 months of surgeries and antifungals. Skyler has not had such good luck - hoping that he licks all of this and can move to being a regular "cancer kid".
You are an amazing mom and I hope that you and super Skyler can escape from the hospital soon!
Prayers and hugs from Texas,
This made my day! I am so happy he is out of surgery and back with his mommy where he belongs. This surgery is your ticket out of there.. now little Sky just needs to heal, heal, heal! You are so amazing Crystal! Keep on..Keepin on! XOXOX
Thank you for the post. I've been check the computer between doing preschool story times at the library. Finally decided to refresh the page and was so happy to see your post. He hasn't had the best luck but he sure knows how to beat the odds! We will continue to pray for more miracles.
Thank you so much for the update. for taking the time to let us all know when your mind is somewhere else I am sure. I know for all of us we appreciate you taking your time to update us. We all love you and Skyler! More prayers..When Amelia first started her fight almost 1 yr ago, one of their friends from either Germany or Austarllia sent them an email that said "prayers coming thick and fast" from all over the world, and I believe that is true for Skyler today.
My name is Trina I have been following your story for quite some time since my sister told me about it. I have been a nervous wreck all day waiting for you to blog how it went thank you for the update I am so happy that he is doing well. I would like to do sponsor you and Skyler for Christmas please let me know what you need.. You two will be in my prayers you are both heros to me.
I've been praying all morning for Sky, I'm so glad it went okay! We're sending lots of love and prayers your way!!
I read through your blog today and I just want to send big hugs your way. You guys have had a rough road. I have a four year old with ALL and I belong to the ALL List Serve some of the others have mentioned. My little man will turn four in January and was diagnosed at age two. He is in Maintenance right now, but I remember those rough days in the beginning of treatment. I am praying like crazy for you guys and I hope that getting that spleen out will help with that fight against the fungus. Sending much love and prayers...
-Krin Thorpe (and Mathias)
YAY!!! I'm so glad everything went okay!! We love you guys so much and pray and think about you constantly!! Love you!!!
-Adam and Nicole
So glad to get an update, Crystal! Rachel and I have been praying for you and Skyler and hoping the surgery would go okay. You both continue to inspire us. I know it hasn't been easy, but you have been right there beside your little guy! We will continue to keep you in our prayers.
--Marie and Rachel Steele
My son Patrik also has ALL, and I learned about your tough journey through a friend on the ALL list-serve.
We will be praying for you, and sending healing thoughts!! May God heal Skyler and provide comfort for you.
Joy
I am so glad that things went ok. Many prayers...Skyler is a fighter!
So happy to hear things went well! You are on my mind EVERY day. You are an amazing girl, and Heavenly Father is holding you through all of this.
You had to be something pretty special up in heaven to be able to take all of this on! All my love and prayers are being sent your way.
Tayna
So glad that all went well. Prayers are always answered. Will continue to pray for you both.
Val & Mike
Thank you for the updates!
We keep praying for him and for you. We love you guys!
Trav, Krista and the kids
I am so happy to hear that the surgery went well and he is back with you. Skylar is such a fighter and hopefully he can start to heal now. We are always thinking of you guys and praying like crazy that this is the turning point for both of you. We will continue our prayers, and keep you in our thoughts. Bless both of you.
YAY!!! That little Skyler is one tough cookie! Now we will pray for a speedy recovery from the surgery. I hope the pain goes away fast!
So great! We will continue to pray like crazy for you and your son! He is such a fighter! So amazing!
Thank you so much for updating. Praying he will recover quickly and that this surgery will be what he needed. xoxoxo
My heart is breaking for you, all the loss and sickness that you have had to deal with,,,, I am so amazed by your spirit. I pray that your sweet baby boy will beat this awful disease, what a strong little boy he is. may god bless you and watch over you both
Thank you so much for the update. My four year old little girl (Ashton) asks every morning how Skyler is doing and we pray for him every day. You are so blessed to have such an amazing and courageous little boy!! Please know you are in our thoughts and prayers.
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