Thursday, November 18, 2010

Skyler's fevers have not gone anywhere.  He will spike a fever at least once a day, but usually twice a day.  Yesterday he actually dropped down to 33 degrees C which equals 92 degrees F.  That's so low that we had a room full of people in here looking at him.  He was still perfusing good though, so we just covered him with the warm blankets they have here.  It took him two hours to get up to 35 degrees which is still low.  We were just all so confused because he is usually always so hot.  It isn't unusual for him to get up to 40 degrees which is about 104 degrees F.  The doc was saying that sometimes in babies their temps will drop low and that is their form of a temp, so that's maybe what was going on with Sky.  It's still very weird though because it is so different for him.
They decided they wanted to do another CT scan to check for any new infections  he may have that would explain these fevers.  They also decided that this time he would need contrast for the scan.  It is a dye that they put in his body so they can see more on the scan.  We havent been using it though because it is hard on kidneys and the last thing he needs is for his kidneys to take another hit.  But after talking to the kidney doc he said to go ahead and use it this time because the benefit outweighs the risk at this point.  They needed to be able to see if they were missing anything.  So we did that yesterday and to our great surprise the scan looked GOOD.  He has no new infections and everything that showed up on his last scan has improved.  This is pretty much a miracle!  I was beyond happy.  We still dont have anything to explain his fevers, but this is still great news.  Another little miracle was that he has been able to pee the contrast out without any problems, and his labs still look great.  So this means that his once very confused kidneys have become smart again.  (As Skyler would say "SAWEET")
Today we found out that we may be looking at taking out his spleen next week.  We have another bone marrow aspiration scheduled for monday.  Then depending on how that looks and how his counts are looking they will decide whether or not to take it out that week.  Talk about scary!  I new this was bound to happen but I was thinking that it would be at least another month or so to let his body recover more.  But I guess that having no spleen is more important right now in his recovery instead of having a spleen that is useless and causing more problems.  Still scary though to think that they are going to be taking out one of Skyler's organs that helps fight infections. 
Today we had a visitor named Cami.  She is one of Skyler's little cancer buddies.  After she was done with clinic, she and her sweet mom came up to see Sky.  Here is a picture of the two them.  I have to say, she is one of the cutest girls ever!  She makes me smile every time I see her.  Thank you Chelsea and Cami for making our day!


Chelsea said...

Crystal, I cant even begin to tell you how great it was to see Skyler's eyes open and talking! I am so happy to hear that the scan looked good.. YAY, finally some good news! He is such a trooper! Cami hasn't stopped talking about Skyler and how much she loves him. We think about you guys all the time. Prayers are still coming your way. XOXOXO

Kasey, Nicole, Lexie, and Kenzie said...

Hi crystal! I don't know if you remember me but I met you when I was at the hospital with my baby. Our parents know each other. I just wanted you to know what an incredible mom I think you are. You have a beautiful son. Please know we think about Skyler and your family often. You guys are in our thoughts and prayers. We love reading about skylers story. We smile and cry while we read it. We think you two are so special and are so brave. We admire your strength and wish you nothing but the best!

Natalie Carver said...

Ok the pic of Cami and Skyler, I am in tears now over it! It is so so so cute! They will be buds forever! I love it! Holding their little teddy bears! It melts my heart! So glad that they have each other to go through this yucky process together! Keep going you two!
Super Heros!

Beth.. One Blessed Nana said...

That is the cutest picture! skyler looks happy and that does my heart good!

Praying continually for this precious baby boy of yours!

Cami said...

That is such good news about his recent CT scan!! Yay Skyler!!! I love that adorable picture of the two; could the kids be any cuter? I don't think so! Sorry I missed you when I was up daughter had a rough go after surgery. We will be back in two weeks for another surgery! Would love to see you and bring you a SALAD....Cafe Rio perhaps?! Let me know if that would be ok with you
It was so nice meeting you! You are an AMAZING lady! Your strength and courage is so admirable; THANK YOU for your example. You both are in my prayers!