Tuesday, November 9, 2010

Today Skyler is having two tests done to see if we can figure out what is going on with him.  The first is an EEG where they attach electrodes to his head and look at his brain waves to see if there is any seizure activity going on, and an MRI of his brain.  Since coming down here to the ICU his mental status has improved, he is not nearly as sleepy, and when he is awake he is his normal self...which is great.  He is throwing up alot more and alot more frequent though.  They are going to have the GI docs come look at him either today or tomorrow also to see if we can find out whats causing him to throw up so much.  I know chemo can make you throw up but this just seems different to me.  I will let you know the results of the tests tomorrow and let you know what these knew docs come up with.

This is Skyler getting the EEG test done.  He did great getting those wires attached to his head.  These are the times I am grateful for his bald head because that would have hurt taking all those off with a head full of hair...ouch!

10 comments:

Anonymous said...

Dear Crystal: Thanks for the update. I check to see what's going on & appreciate seeing new news. I feel so helpless and feel like all I can do is tell you how strong and fabulous I think you are. As in the past if there is
anything you might need or want please please ask and I will get it for you. I am constantly praying for you and Sky.
Love Denise

johnjillhuz said...

Crystal,

You are amazing. You are seriously going through some tough trials that only a few people in the world have to endure. You are such a great example to us all. Please know that we are thinking of you guys often and that we are praying for you and for Skyler. We wish there was something we could do to lighten the burden.

Jill Hughes & Family

Chelsea said...

Plus bald heads are the CUTEST!!! We are praying they find an answer for you quickly so you can head back up to the 4th floor! Love you both! XOXOXO

Anonymous said...

Crystal,

I really don't know you and found your story from a friend on facebook. I can't imagine how you feel going through all of this. How scary it would be to watch your child have to endure this trial. It would be hard to watch as a mother! I know you wish that you could take away all of his pain and I truly wish you could as well! I just want you to know what an amazing person and mother you are! You are an amazing example to others. You and your sweet little boy have touched my heart. I will pray for you and your precious little guy. Heavenly Father knows your son and he knows you! He loves you both more than anyone can know! Keep having faith. You are amazing!

Amanda said...

I hope these new doctors will have some answers for you soon. The unknown is so hard, but know that we are praying for you and Sky.

Anonymous said...

Dear Crystal, Please know that you are not alone. Praying much for you and Sky...

Briana said...

We hope you are able to find some answers soon! It really is so hard not to know what is going on and what to do for it. It can be so scary. You guys are so amazing! Thanks for posting lots of updates - we pray for you guys and think about you often even though we've never met sweet Skyler. You guys are inspiring.

Beth.. One Blessed Nana said...

Continuing to pray for little Skyler!

If you are reading this hop on over to my prayer blog and grab SKyler's button off my sidebar and post on yours so that EVERYONE can pray for him!! There is power in prayer my friends!

Beth

http://athisfeetinprayer.blogspot.com

Plain Jame said...

Crystal, you sweet mother - my heart is breaking with the ups and downs of skylers fight. I dont even know him and I love him. I am praying for him, and spreading the word about the concert. Hugs.

Anonymous said...

I hope and pray that your little guy keeps up the good fight. I love the Superman background! (Or maybe Skylerman!) Go Skyler!!!

Nick Bollschweiler