Clinic went well this week. Skyler got another dose of Vinc and Doxo and has been doing well with them so far. He still gets nauseous and throws up, but it hasnt been unbearable. His bone marrow results came back and he is still in remission! Im so relieved. I always get really anxious waiting for that report to come back. Skyler's ANC also jumped up from 900 to 5600! I was expecting it to drop really low so I was really surprised. I thought I was looking at someone else's labs at first. The doc says that sometimes they will jump up before they drop, and they will drop within the next week or two. One thing that I am worried about is his bili has gone up along with his AST and ALT (liver function) The bili isnt too high and its still in the normal range but the AST and ALT are alot higher than I want them to be. We will just have to keep a close eye on them. Skyler doesnt look yellow (jaundice) but his coloring looks a little off to me. His hematocrit was low, not low enough for a transfusion but I think he may need one here in the near future.
Skyler is a champ now when it comes to taking his meds by mouth and eating. He definitely doesnt like to do it but he does it anyway. I am so proud of that boy! I thought he was going to have to have that tube in for at least another year. He continues to amaze me everyday. I am in awe of his strength and courage. He has had to go through so much yet he still is the happiest and sweetest little boy. He has a heart of gold. He is always thinking of others and ways to make them happy. The other day we got alot of Easter stuff to make. We decorated eggs, made Easter cookies and filled Easter eggs with candy. When he was done he had to make sure EVERYONE had one of each. He gave away all of his stuff to his cousins, Ty, me, grandma and grandpa. He didnt even leave any left for him even though he was so excited about me getting all that stuff for him. Thats just how he is, he is happy making others happy. I really am so grateful to be his mom.