Today was the big surgery day. Skyler and momma were both scared. I held off telling him until last night because I didnt want him having anxiety about it for too long. Even though he was really scared, we talked about it and I after I answered all of his questions he seemed to calm down. At 8:00 this morning he was scheduled to go in for a CT scan. There they sedated him, stuck a needle into his lung where one of the nodules was and injected some dye. That way when he went in for surgery the surgeon would be able to see better the part of the lung that he would remove. To sedate him they gave him Versed, Ketamine, and Fentynel (I dont know how to spell those) I hate Ketamine. It puts him into lala land and he doesnt remember a thing, but he still has his eyes open looking at me and they twitch back and forth. I like it much better when they just knock him out and he looks like he is sleeping. Its also easier for me when I have to leave him in the room if he looks like he is peacefully sleeping. Its hard leaving my little boy laying on the table alone when he is looking at me and I have no idea if he is aware that mommy is leaving him all by himself. Ugh that one really got to me today.
The procedure went really well and they were able to inject the dye in the right spot. The guys that did it are the ones that put in all his dialysis catheters and were so used to seeing him at his worst, so they were blown away by how good he looked. When they were done he woke up crying and wanting mommy and still had the effects of the drugs in his system. It was kind of funny because he was looking at me all weird and saying I had two noses and mouths and four eyes, he was also playing with my hair because he was fascinated by it. Silly boy. As soon as he was more awake and I had two eyes again, they took him to a room in post op to wait for his surgery. The poor kid had to wake up out of sedation and be put in a room for over two hours while not being able to eat or drink, and then be put out again. I was really worried that this would turn into a disaster but he did so much better than I thought he would. Again, he never ceases to amaze me. At about 11:30 they took him back to the operating room. The surgeon was actually the one that removed his spleen and is wonderful so I was confident he was in good hands. Its nice having people who have worked with him at his sickest because they understand how fragile and "special" he is. The surgery was about an hour and a half and went really well. They made an incision in his back, spread his ribs apart, stuck a scope in there and took the part of his lung they wanted to biopsy. He woke up in extreme pain though. They had to give him two doses of Morphine and he was still in pain, it was so sad to see and it broke my heart. When we got up to our room here in ICS they gave him another dose of Morphine for his pain. He has pretty much been in pain most of the day. They said to expect this because they had to spread his ribs and also put in a pretty large chest tube to drain the excess fluid and air. Right now he is doing ok, not great, but ok. His oxygen level has stayed pretty low so he is requiring blow by oxygen. He also starting getting really croupy and now they suspect he has a pneumothorax (air in his lung) I just hope that this chest tube will be able to fix this and it doesnt get any worse.
We still havent gotten any test results back yet. Hopefully by tomorrow or the next day they will know something. We dont know how long he will have to stay here at the hospital, it just depends on how he does and what they find. I will update more when I know more. Thank you for all your prayers.
Getting ready to go back for the CT scan