Skyler still continued to have fevers throught he night and the morning. The cultures and the viral tests all came back negative so they sent us up for a CT scan today. I was praying that they wouldnt find anything and that this would just be a mysterious fever that would just go away on its own. I was wrong. The scan showed pockets of infection in his lungs. We are pretty certain its the fungal infection again. What we dont know is the best way to go about treating it. We need to know if we just need to switch antifungal medications, add a new one to the mix or if this is a different fungus all together. We have two options in how to proceed with this. We can start him on an extra antifungal and see how he responds or we could take him to the operating room and biopsy part of his lung. The problem with just seeing how he responds to a new medication is that he could progressively get worse fast and if he gets too sick like he was before he would be too sick to handle a surgery like this. I opted for the surgery now. As scary as this is, I want to know exactly what we are dealing with while he is healthy enough to tolerate the surgery. He will go in Thursday for the biopsy. They will take him to get a CT scan first. He will be sedated and they will stick a needle into the part of his lung where a little pocket of infection is and inject some dye. Next they will take him to the operating room, intubate him, stick a scope into his lungs, collapse his lung and remove a part of his lung to biopsy. However, if the spot is too hard to reach with a scope they will have to make a large incision on the side of his lung and open him up. Either way he will most likely end up with another dreaded chest tube to drain any extra fluid or air. We will be inpatient for awhile depending on how he does. If everything goes well they could probably send him to ICS instead of the PICU to recover. Hopefully the sample they take will be able to tell use just what we are dealing with and the best way to treat it. Please pray that this is NOT a new form of fungus. That would be devastating. This whole situation is devastating actually. I thought we were over the worst part. I am so scared to go down this road again. I am scared for Skyler. He has been doing so good lately, he has come too far to have another huge set back. Please pray for his safety during surgery. Please pray that this is something that isnt going to send him back to a bad place. Please pray that after the surgery he will be able to receive his chemo again so we can keep this dreaded cancer away that started all this in this first place. The doctor said that most likely this phase of treatment helped activate this infection. This is exactly what I feared would happen.
Right now his temp is 104.4. The fever curve is getting higher so hopefully we can get him treated properly fast. We will go to clinic again tomorrow for more cultures and to see what his counts are. Hopefully they havent dropped yet. Thank you for all your prayers and support. It means so much to me especially during this difficult time.