Friday, April 22, 2011

So I just talked to ID, they said that if it is in his blood or lungs then yes it is bad.  The drug to treat it is harsh, harsh like chemo harsh.  We wont get results for another couple of days or so.  Since he is still having high fevers he will go in for another CT today to see what the nodules are doing.  It looks like we are dealing with two infections.   Also we have only been here a week but Skyler is also dealing with some more break down on his bum even though I turn him every two hours.  The last thing he needs is another wound on his bum.  Im pretty sad at how things are turning out.  We will be here for at least a couple of weeks it looks like.

14 comments:

Amanda said...

Crystal,
I am so sorry. I am MAD! FURIOUS! He needs to be done with this. He has already fought so hard and it isn't fair. I want to scream at someone and tell them to fix him already. He should be home dying eggs and getting ready for Easter. Cancer sucks and this whole situation sucks. Keep Fighting Skyler, you are stong. We love you and we pray for you every day and night.

Please, please let me know what you need.

Anonymous said...

You don't know me but I'm so sorry for what you and your baby are going through. You are such a good mom. Just hold on tight and keep fighting!

Candhl @ Adventures of a Super Family said...

If I could switch places with Skyler and be sick for him I would. Every time I look at Skyler I see my son who is also 4 and I just can't imagine how you feel. There are thousands upon thousands of us praying for Skyler and for you Crystal.

Anonymous said...

Crystal, after being away for a few days, I thought about you both only to come home and read about what is happening. I am so so so sorry, upset and worried for you and your sweet angel. Skyler is such a wonderful little spirit. I know that you don't know me, but I want you to know that I will help you and skyler in any way that I can. My son zachary and I will say EXTRA prayers... crystal , I am so sorry.

zachs mom

Anonymous said...

I'm so sorry to hear everything that you and Skyler are going through. Poor Skyler needs a break! Every time I read your blog it gives me the strength to keep moving forward despite some of my own medical problems...even though they seem major to me they seem so minor in comparison to what Skyler is going through. Skyler is so strong. I hope that he is able to get some relief soon. He is always in my prayers.

Susi said...

Sorry Crystal. This is just so unfair!! Please God just heal him! Wish there was something we could do!! :( Stay strong for Skyler... he was entrusted to you for a reason... we will keep praying cuz it's all we can do.

Katie said...

I'm praying like crazy for Skyler and you. I'm so very very sorry. This just plain stinks and there's nothing good to be said about what he is going through. He is such a wonderful boy and you are such a great mom to him and an inspiration to so many. You don't know me but I read every update and think about Skyler and you every day and pray for you every day.

Katie - mama to Jacob dx 7.28.2010 pre-B ALL

dailydaph said...

I am so sorry about all this. It really just sucks and that's all there is to it. I hope you guys are able to get out of there ASAP. And stay out.

I just don't know what else to say. Enough is enough already.

You do have lots of people thinking about you guys. Would cards, etc. help lift his spirits and keep his mind off of things? You've got lots of little cancer friends who'd love to help cheer him up.

I just don't know.

Misty Jo said...

Crystal I am so sorry! I hope things start turning up for Skyler and you. Extra prayers are coming your way!

Thomps Fam said...

Poor sweet dude! I love him. Someday my children and I would love to meet him! They probably don't allow visitors where he is now, but can we ever come there and bring him a gift?

Michelle and Sean said...

Just want you to know that we have been praying for you both! I am so sorry that Skyler is going through so much. I don't understand why our little kids have to suffer so much.

Praying hard!! And thinking about you always!!

lindsay Roscoe said...

Skyler we love you!! keep FIGHTING kid!! Happy Easter and i'm so sorry you are at the hospital

Utah said...
This comment has been removed by the author.
Jen Herem said...

ugh.. crystal, i am so sorry for how things are going right now! ive heard how strong you and skyler are and i know this too shall pass. :) please.. please let me know if you need anything or if you want anything documented! i would be there in a second, im serious! ive never even met you guys but i already love you!

dont hesitate 801.898.4783
jen herem
xoxo