So I know I already posted today but if I dont write things down when I find them out I forget things.  I talked to a couple attending docs about what we found out today and they are all pretty much in agreement that aside from cancer Skyler also has an immune deficiency or syndrome.  He definitely does not have a normal immune system, and then add cancer on top of that and it makes for an easier time getting infections.  He has just had too many odd things that arent supposed to happen with his type of cancer.  It does make sense though because it seems that his whole life he has been sick.  He always had some type of virus that turned into croup.  He could never go longer than five weeks without getting croup.  To find out for sure what type of immune problem he does have he needs to be off chemo, so it looks like in a little over three years we will find out the answer for sure.
Our plan now since we still dont have any answers is to basically just wait and see what his counts and fevers do over the next week or so.  If they are trending down then thats good and we will just leave him on these 3 antibiotics for several months.  If nothing changes or things start trending up then we will have to look into changing around his meds and doing a full body CT scan with contrast this time.  They normally give contrast through an IV before they get scanned so they can see everything, but we have been doing his without contrast because contrast hurts the kidneys and the last time we gave him contrast it landed him in the PICU the 2nd time intubated.  Im just not willing to risk that right now unless it is absolutely necessary.  The problem doing it without contrast though is that you cant see everything so we could be missing something.  One of the hardest things for me is trying to make the right decisions is Skylers care.  I have had to make some pretty big decisions that I wish I never had to make, but this is the situation we were dealt I have tried so hard to make the right ones.  I think one of the biggest lessons I have learned is to go with my gut.  A mothers intuition is key.  I have learned so much about myself through this process and I am grateful for that.  I wish I could have learned these things without the words "child" and "cancer" in the same sentence, but I believe we are given trials for a reason and we can become better and stronger because of them.  Thank you everyone for your continued support.  I have become a better person because of you and your service, kind words and encouragement.  This devastating world of cancer really has opened my eyes to the good people in this world.

I was able to take the bandage off of Skyler's chest tube site.  This is his 6th chest tube scar, one of the many scars that he is covered from head to toe in.  There isnt a limb on him now without at least one cancer scar.

And this is just a cute picture I took today.  His cancer buddy gave it to him and it makes me laugh everytime I look at it.